f*********d
发帖数: 8 | 1 One of my friend in China was diagnosed as Glioma. He was planning to come
to USA for the treatment since he was told that the treatment of this tumor
in USA is much more advanced than China. Can any expert on this board help
to answer several questions please?
1. What hospital do you recommend I contact considering both expertise and
cost?
2. What is the cost for diagnosis and treatment without insurance?
3. What is the chance of being recovered from this disease?
Thank you very much for your h... 阅读全帖 |
|
i****x
发帖数: 17565 | 2 你那个国内烂校学报的”科研“结论跟以下所有结论矛盾的时候，你说我们该信谁呢？
In 2006 a large Danish group's study about the connection between mobile
phone use and cancer incidence was published. It followed over 420,000
Danish citizens for 20 years and showed no increased risk of cancer.[21] A
2011 follow-up confirmed these findings.[22]
The following studies of long time exposure have been published:
The 13 nation INTERPHONE project – the largest study of its kind ever
undertaken – was published in 2011 and did not find a solid li... 阅读全帖 |
|
i****x
发帖数: 17565 | 3 认英文的话，随便读读这些权威机构的报告吧。注意，别拿”没有证据证明辐射有害“
说话，再解释一遍，统计学的假设检验理论根本不可能给出辐射无害的证明，只能要么
证明辐射有害要么无法证明辐射有害。
In 2006 a large Danish group's study about the connection between mobile
phone use and cancer incidence was published. It followed over 420,000
Danish citizens for 20 years and showed no increased risk of cancer.[21] A
2011 follow-up confirmed these findings.[22]
The authors reported the following conclusion:
Overall, no increase in risk of glioma or meningioma was observed with use
of mobile phones. ... 阅读全帖 |
|
A*******s
发帖数: 9638 | 4 Recommendations on Cell Phone Use and Cancer Risk（ZZ)
Allison Gandey
Information from Industry
Think what it could it cost you not to adopt an EHR system
For office-based physician not adopting an electronic health records(EHR)
system by 2015, Medicare payments are planned to be reduced.
Calculate impact June 22, 2011 — The evidence is limited when it comes to
cell phones and cancer risk, but specialists say common-sense measures can
come into play until the science catches up with technology.
T... 阅读全帖 |
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c***a
发帖数: 118 | 5 中国专家没有写的结论，是通过电话告诉我的：不像肿瘤，感染或者脱鞘病还不能确定。
我现在也想跟第一个Radiologist聊聊，为什么得出了99%是Ponti Glimoma的结论，报
告上写的第一个MRI的结论是“Probable small pontine glioma, the appearance is
unlikely to represent a vascular malformation, focus of demyelination,
infective-inflammatory process or ischemia”。也就是说第一个Radiologist认为
不像是感染，不像是脱鞘病，也不像血管变形，可能是小的脑主干胶质瘤（这个位置好
像多数是恶性肿瘤）。但是印度家庭医生跟我沟通的时候，说Radioligist告诉他，99%
是pontine glioma,我觉得在这点上印度家庭医生应该不会撒谎。家庭医生听到读片专
家这么说，然后就转述给我。然后加了他自己对pontine glioma的理解：expected
life 一年等。我觉得是这个Radioligist见的病... 阅读全帖 |
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o**********e
发帖数: 18403 | 6 【 以下文字转载自 SanFrancisco 讨论区 】
发信人: onetiemyshoe (onetiemyshoe), 信区: SanFrancisco
标 题: 为什么说庸医误诊 (转载)
发信站: BBS 未名空间站 (Fri Sep 19 09:51:43 2014, 美东)
http://www.mitbbs.com/article_t/Seattle/33091583.html
原帖在上面：后来解释了更具体
发信人: chcpa (Bay Area CPA), 信区: Seattle
标 题: 为什么说庸医误诊
发信站: BBS 未名空间站 (Thu Sep 18 21:30:29 2014, 美东)
为什么说是误诊或者庸医？
看了大家的帖子，很多细节大家有问题要问是正常的，现在慢慢来说：
事情的起因是我由于爸爸妈妈离开美国和公公婆婆来美国带孩子之间有几天的gap，我
在家带孩子同时晚上加班公司的事，太累了，加上压力大，右半边脸面瘫了。然后我就
在Zocdoc.com上想找个家庭医生看下，找了一下，有个印度医生当天就有时间，我就约
了（以前用过一次这个印度家庭医生，... 阅读全帖 |
|
o**********e
发帖数: 18403 | 7 【 以下文字转载自 SanFrancisco 讨论区 】
发信人: onetiemyshoe (onetiemyshoe), 信区: SanFrancisco
标 题: 为什么说庸医误诊 (转载)
发信站: BBS 未名空间站 (Fri Sep 19 09:51:43 2014, 美东)
http://www.mitbbs.com/article_t/Seattle/33091583.html
原帖在上面：后来解释了更具体
发信人: chcpa (Bay Area CPA), 信区: Seattle
标 题: 为什么说庸医误诊
发信站: BBS 未名空间站 (Thu Sep 18 21:30:29 2014, 美东)
为什么说是误诊或者庸医？
看了大家的帖子，很多细节大家有问题要问是正常的，现在慢慢来说：
事情的起因是我由于爸爸妈妈离开美国和公公婆婆来美国带孩子之间有几天的gap，我
在家带孩子同时晚上加班公司的事，太累了，加上压力大，右半边脸面瘫了。然后我就
在Zocdoc.com上想找个家庭医生看下，找了一下，有个印度医生当天就有时间，我就约
了（以前用过一次这个印度家庭医生，... 阅读全帖 |
|
o**********e
发帖数: 18403 | 8 http://www.mitbbs.com/article_t/Seattle/33091583.html
原帖在上面：后来解释了更具体
【 以下文字转载自 Seattle 讨论区 】
发信人: chcpa (Bay Area CPA), 信区: Seattle
标 题: 为什么说庸医误诊
发信站: BBS 未名空间站 (Thu Sep 18 21:30:29 2014, 美东)
为什么说是误诊或者庸医？
看了大家的帖子，很多细节大家有问题要问是正常的，现在慢慢来说：
事情的起因是我由于爸爸妈妈离开美国和公公婆婆来美国带孩子之间有几天的gap，我
在家带孩子同时晚上加班公司的事，太累了，加上压力大，右半边脸面瘫了。然后我就
在Zocdoc.com上想找个家庭医生看下，找了一下，有个印度医生当天就有时间，我就约
了（以前用过一次这个印度家庭医生，看起来还行，人挺nice）。印度医生看了下，诊
断为Bell's Palsy,也就是中国的面瘫，给开了类固醇和anti virus的药，然后保险起
见给开了MRI，当天就做了MRI，在Bellevue Medical Imaging Cente... 阅读全帖 |
|
c***a
发帖数: 118 | 9 为什么说是误诊或者庸医？
看了大家的帖子，很多细节大家有问题要问是正常的，现在慢慢来说：
事情的起因是我由于爸爸妈妈离开美国和公公婆婆来美国带孩子之间有几天的gap，我
在家带孩子同时晚上加班公司的事，太累了，加上压力大，右半边脸面瘫了。然后我就
在Zocdoc.com上想找个家庭医生看下，找了一下，有个印度医生当天就有时间，我就约
了（以前用过一次这个印度家庭医生，看起来还行，人挺nice）。印度医生看了下，诊
断为Bell's Palsy,也就是中国的面瘫，给开了类固醇和anti virus的药，然后保险起
见给开了MRI，当天就做了MRI，在Bellevue Medical Imaging Center。做MRI的时候，
开始扫描了一次，之后就注射显影剂，做了对比。我回来查了一下什么情况下会注射显
影剂，一般是发现了东西要做比对，有网上资料说是为了看是恶性还是良性，当然这种
说法是不对的。本来印度医生说，他跟核磁共振的地方说了，让Radiologiest马上告诉
我结果。但是Radiologiest出来以后，跟我握手，说结果没出来，要我明天来。
我当晚就感觉忐忑不安，不详的预兆。... 阅读全帖 |
|
o**********e
发帖数: 18403 | 10 http://www.mitbbs.com/article_t/Seattle/33091583.html
解释【 以下文字转载自 Seattle 讨论区 】
发信人: chcpa (Bay Area CPA), 信区: Seattle
标 题: 为什么说庸医误诊
发信站: BBS 未名空间站 (Thu Sep 18 21:30:29 2014, 美东)
为什么说是误诊或者庸医？
看了大家的帖子，很多细节大家有问题要问是正常的，现在慢慢来说：
事情的起因是我由于爸爸妈妈离开美国和公公婆婆来美国带孩子之间有几天的gap，我
在家带孩子同时晚上加班公司的事，太累了，加上压力大，右半边脸面瘫了。然后我就
在Zocdoc.com上想找个家庭医生看下，找了一下，有个印度医生当天就有时间，我就约
了（以前用过一次这个印度家庭医生，看起来还行，人挺nice）。印度医生看了下，诊
断为Bell's Palsy,也就是中国的面瘫，给开了类固醇和anti virus的药，然后保险起
见给开了MRI，当天就做了MRI，在Bellevue Medical Imaging Center。做MRI的时候，
开始... 阅读全帖 |
|
d********r
发帖数: 303 | 11 Go to following link. choose the link to "brain cancer" it is an NIH lecture
(for none clinicians) on brain tumors. in particular glioma.
http://videocast.nih.gov/PastEvents.asp?c=45
Also, here is another good link in China on glioma.
http://cache.tianya.cn/techforum/content/100/621740.shtml
My opinion is, since the patient is an adult, his tumor most likely will be
high grade glioma. The prognosis is poor. Also it is difficult to do surgery
in brain stem, which makes the prognosis poorer still. |
|
d********r
发帖数: 303 | 12 Some concept:
Glioma = 胶质瘤
Glioma is graded according to its aggressiveness. Grade I is least
aggressive and is the only tumor that might be cured. Unfortunaly grade I is
mostly limited in young people (children, for example). Grade IV is most
aggressive. it is also called glioblastoma multiforme (GBM). The typical
survival period for GBM is about 1 year. Most adult glioma are either GBM or
grade III. grade III will eventually convert into GBM and the overall
survival for grade III is about 3 ye |
|
|
d*w
发帖数: 384 | 14 If it's grade 2, it is low grade glioma (胶质瘤), not gliolastoma (胶质母细
胞瘤). Those patients typically survive for 7-10 years if treated with
complete resection and irradiation.
The decision about surgery mainly depends on the patient's general health
condition. Age is not that important. We recently did a 91 year old.
Chemotherapy in glioma doesn't do much good. |
|
l*h
发帖数: 4124 | 15 this looks like a dorsal exophytic glioma, a type of brainstem gliomas that
is usually operable. please upload MRI images (preferred format: DICOM).
the unfortunate thing is that there are almost no neurosurgeons in China
that can operate on brainstems in small children. but you can find such
neurosurgeons pretty easily in Hong Kong, Taiwan or Japan.
kid |
|
l*h
发帖数: 4124 | 16 this looks like his parietal lobe is affected. combined with male, 59yo, it
is >80% certain it is a high grade glioma.
if it's GBM, the median survival is ~3 mon w/o treatment, ~15 mon with
active treatment in the US. for active treatment, almost every day is spent
in some medical setting.
if it's anaplastic astrocytoma, the median survival is a little longer, up
to double that of GBM.
there is a much lower chance it's a mixed, but high grade glioma.
treatment includes surgery, chemo and radiati... 阅读全帖 |
|
g***o
发帖数: 92 | 17 【 以下文字转载自 Biology 讨论区 】
发信人: ganbo (niu), 信区: Biology
标 题: Position available at Duke University for brain tumor stud
关键字: cancer,postdoc,duke
发信站: BBS 未名空间站 (Thu Jan 27 07:52:31 2011, 美东)
Our lab is part of the Robert Preston Tisch Brain Tumor Center at Duke
University. We are seeking a Postdoctoral Fellow immediately to start
a new project dedicated to understanding malignant glioma
microenvironment and cancer drug resistance, employing
molecular/cellular biology and genetic approaches. We ar... 阅读全帖 |
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k****i
发帖数: 82 | 18 恳请大家帮忙，求助者是我们单位的同事。请帮忙联系有关治疗脑瘤的专业医疗机构（
国内国外不限），或提供相关信息，谢谢。
下面是求助者她的自述：我是一个五周岁女孩的妈妈，她的名字叫Amy,我们来自中国上
海。她是一个善良，快乐，友好的孩子，8月19日在上海的儿童医院做了磁共振，发现
她得了脑干胶质瘤，现在在上海华山医院进行进一步检查。作为父母心情非常焦急，这
边的医生都认为这个病是没办法开刀，对于放疗效果也不一定有用。我们非常沮丧，看
着女儿现在的异样表现，我和她爸爸也很伤心，朋友们都鼓励我要坚强。 异样表现发
生在一个多月前，流口水，走路不稳，最近一周变化特别大，没有力气，眼睛没神，走
路更加不稳，还好她现在没有痛楚，孩子每天都是很开心的。我担心Amy病情变得太快
，急切的盼望你们的回复。
上海建行同事的女儿
脑干胶质瘤求助！
I am a mother of a five-year-old girl. My daughter’s name is Amy and we are
from Shanghai China. She is a kind, happy, friendly chil... 阅读全帖 |
|
g***o
发帖数: 92 | 19 Our lab is part of the Robert Preston Tisch Brain Tumor Center at Duke
University. We are seeking a Postdoctoral Fellow immediately to start
a new project dedicated to understanding malignant glioma
microenvironment and cancer drug resistance, employing
molecular/cellular biology and genetic approaches. We are seeking
self-driven individual with strong motivation, aspiring to undertake
necessary tasks in order to advance glioma treatment. This individual
will perform his/her own research project... 阅读全帖 |
|
g***o
发帖数: 92 | 20 Our lab is part of the Robert Preston Tisch Brain Tumor Center at Duke
University. We are seeking a Postdoctoral Fellow immediately to start
a new project dedicated to understanding malignant glioma
microenvironment and cancer drug resistance, employing
molecular/cellular biology and genetic approaches. We are seeking
self-driven individual with strong motivation, aspiring to undertake
necessary tasks in order to advance glioma treatment. This individual
will perform his/her own research project... 阅读全帖 |
|
Q**********r
发帖数: 214 | 21 谁能给我找一下这两篇paper, 请发到
a*************[email protected]
不胜感激！
Methods Enzymol. 2012;506:311-29.
High content screening of defined chemical libraries using normal and glioma
-derived neural stem cell lines.
Biochemical Society Transactions (2010)
Volume: 38, Issue: 4, Publisher: PORTLAND PRESS LTD, Pages: 1067-1071
Imaging-based chemical screens using normal and glioma-derived neural stem
cells |
|
m********m
发帖数: 263 | 22 同意你的看法。 虽然PKM2的研究可为cancer cell metabolism近几年的亮点之一，但
是它在cancer治疗
中的前景越来越受到质疑。相比之下，IDH的常见的几个glioma and acute myeloid
leukemia相关的功能获得性突变非常引人注目，volgesten和Thompson的IDH文章更被列
为去年cancer领域近几年的 引用之最。最近IDH与epigenetics（通过alfa-KG调控
histone甲基化）的link的发现（Thompson和TWM）可谓至关重要。如果针对IDH的alfa-
KG功能突变设计药物，对治疗glioma and acute myeloid leukemia非常有前景。鉴于
craig thompson的前期关于凋亡与病理的研究突出贡献和他近期对代谢，尤其是IDH，
得研究，估计他离nobel奖不远了
seem |
|
m********m
发帖数: 263 | 23 同意你的看法。 虽然PKM2的研究可为cancer cell metabolism近几年的亮点之一，但
是它在cancer治疗
中的前景越来越受到质疑。相比之下，IDH的常见的几个glioma and acute myeloid
leukemia相关的功能获得性突变非常引人注目，volgesten和Thompson的IDH文章更被列
为去年cancer领域近几年的 引用之最。最近IDH与epigenetics（通过alfa-KG调控
histone甲基化）的link的发现（Thompson和TWM）可谓至关重要。如果针对IDH的alfa-
KG功能突变设计药物，对治疗glioma and acute myeloid leukemia非常有前景。鉴于
craig thompson的前期关于凋亡与病理的研究突出贡献和他近期对代谢，尤其是IDH，
得研究，估计他离nobel奖不远了
seem |
|
B****d
发帖数: 2 | 24 We are a small but active lab that centers on translational cancer research.
On the basis of our recent findings in BET bromodomain epigenetic readers,
we decide to expand our study in this emerging field.
Position: We are seeking for independent, ambitious, and self-motivated
candidates for a postdoctoral fellow position to study the epigenetic
mechanisms in cancer. The main goal of our laboratory is to develop
innovative diagnostic and therapeutic strategies for glioma and other brain
cancers... 阅读全帖 |
|
f******g
发帖数: 1003 | 25 A vaccine targeting mutant IDH1 induces antitumour immunity
Monoallelic point mutations of isocitrate dehydrogenase type 1 (IDH1) are an
early and defining event in the development of a subgroup of gliomas1, 2, 3
and other types of tumour4, 5, 6. They almost uniformly occur in the
critical arginine residue (Arg 132) in the catalytic pocket, resulting
in a neomorphic enzymatic function, production of the oncometabolite 2-
hydroxyglutarate (2-HG)7, 8, genomic hypermethylation9, 10, 11, genet... 阅读全帖 |
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h**********1
发帖数: 40 | 26 【 以下文字转载自 MedicalCareer 讨论区 】
发信人: boardfan (麦地三步曲之二), 信区: MedicalCareer
标 题: 请帮助拯救小安琪 (转载)
发信站: BBS 未名空间站 (Wed Oct 29 23:51:29 2008)
发信人: luckygreat (lucky), 信区: Medicine
标 题: 请帮助拯救小安琪
发信站: BBS 未名空间站 (Wed Oct 29 01:41:13 2008)
（我们上周发了封英文版的寻求帮助的信，但小Angela的情况紧急， 请允许我们发这
封中文版的，希望能得到更多的回音和帮助。）
安琪，Angela，一个四岁的可爱的中国小女孩，上个星期在西雅图被诊断为脑干肿瘤（
Brainstem Glioma），医生预计只有半年至两年的生存机会（平均是7个月）。
她的父母是在10月13号最早发现这个可怕的事实，当时注意到小安琪有点走路不稳，容
易摔跤。第二天带去看医生，立刻就被送去西雅图儿童医院的急诊室，马上做了CT和
MRI，结论是Brainstem Glioma。这对小安琪的父母来说犹如晴天霹雳 |
|
j*****d
发帖数: 686 | 27 我从medicine 看到的这个消息，看看大家能不能帮助她！谢谢
发信人: luckygreat (lucky), 信区: Medicine
标 题: 请帮助拯救小安琪
发信站: BBS 未名空间站 (Wed Oct 29 01:41:13 2008)
（我们上周发了封英文版的寻求帮助的信，但小Angela的情况紧急， 请允许我们发这
封中文版的，希望能得到更多的回音和帮助。）
安琪，Angela，一个四岁的可爱的中国小女孩，上个星期在西雅图被诊断为脑干肿瘤（
Brainstem Glioma），医生预计只有半年至两年的生存机会（平均是7个月）。
她的父母是在10月13号最早发现这个可怕的事实，当时注意到小安琪有点走路不稳，容
易摔跤。第二天带去看医生，立刻就被送去西雅图儿童医院的急诊室，马上做了CT和
MRI，结论是Brainstem Glioma。这对小安琪的父母来说犹如晴天霹雳。
他们又咨询了孟菲斯的Saint Jude儿童研究医院，也得出相同的结论。因为肿瘤的位置
是在脑和脊椎的结合部，所以手术的可能性微乎其微，唯一的选择似乎只有放射疗法。
但是即使是放疗有效，也只能是在一定程 |
|
|
|
A*******s
发帖数: 9638 | 30 不是，我当时的第一印象是venous angioma，不过觉得telangiectasia更可能。
contrast enhancement让它跟glioma很难分，但急性的病史加上adult让我很难buy
glioma |
|
G****e
发帖数: 1912 | 31 由政府委托的联邦研究团队证明，大麻(cannabis)有”不可接受的医疗用途”，这可能
无意间让资讯被泄漏，其揭露大麻实际上如何杀死癌细胞。
由伦敦圣乔治大学(St. George’s University)科学团队所进行的研究发现，在大麻中
含有两个最普遍的大麻素。Herbal Dispatch的Mike Adams表示:四氢大麻酚(THC)和大
麻二酚(CBD)，能减弱癌细胞的活力和让它们更容易受到化疗影响。
去年，这个研究发表在分子癌症治疗(Molecular Cancer Therapies)医学期刊上，详细
说明当这些特殊的大麻素与化疗结合使用时，脑癌致命多样性的大幅减少。
首席研究员Dr. Wai Liu，在2014年11月华盛顿邮报(The Washington Post)专栏中写道
，”我们已经证明大麻素在治疗成人身上最具侵略性的癌症中，能发挥作用。结果是有
希望的…它提供突破神经胶质瘤(glioma)[肿瘤]的方法并拯救更多生命”。
美国国家药物滥用研究所(NIDA)报告表示:”最近的动物试验已证实大麻可杀死一定的
癌细胞，且可减小其他癌细胞的大小。从一项动物试验证据... 阅读全帖 |
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发帖数: 1 | 32 11 月13日 终于找到另一股在我家害我的势力
昨天，这些人折腾了一天，白天，晚上皮啦啦，也不知道谁把谁杀了，谁把谁带走了。
反正我先生和孩子被绑架了，就不知道是不是已经遇害了。我本来是打算睡觉的，但他
们头上，地下装电磁波攻击器，让我几乎窒息。虽然我没倒下，但其实他们在我身上扎
的毒针已经蔓延，我能感觉到我的呼吸有窒息的感觉。我想我对他们已经非常仁慈了，
但他们不依不饶地攻击我，欲置我于死地，让我非常生气，特别是肆意伤害我家里的人
，绑架我先生和孩子，而且有许许多多无辜的生命毁于他们之手，有必要把他们曝光。
当然我还没分析这里边是那几个人具体攻击我，伤害我的，但他们显然都是一伙的。鉴
于他们伤害我的头部，胸部 和胃部，我就把这几部分的医生都曝光，受害者慢慢去调
查，追查他们吧。
Cleveland Clinic, Website: my.clevelandclinic.org
Call 855. REFER. 123 or 855.733.3712
Lung Cancer
Results: 57 Doctors
PREV123NEXT
Results per page:
Dav... 阅读全帖 |
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w********h
发帖数: 12367 | 34 没有不允许。但有有限保留时间。
//你做brain tumor？仔细谈谈做哪方面？glioma的药物temozolomide做么？ |
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b***b
发帖数: 13249 | 35 【 以下文字转载自 Seattle 讨论区 】
发信人: chcpa (Bay Area CPA), 信区: Seattle
标 题: Learnings-从99% 脑干恶性肿瘤（expected life one year）说起
发信站: BBS 未名空间站 (Sat Sep 20 11:54:01 2014, 美东)
1. 慎重选择家庭医生的重要性（对初始症状的判断、医德以及refer的specialist是否
是专家），
2. 请远离印度医生，远离Overlake hospital,去UW后者Swedish吧: niumum总结的好，
“他们的习惯和民族性决定了他们中大多数人不在乎別人（贱民）的生命。做事投机取
巧，草菅人命” Overlake hospital因为是个一般的医院，所以医生水平平庸是可以预
见的。中国医生和美国医生更靠谱些，尤其是有些中国医生出身医学世家，医德高尚。
3. 如果拿到不好的诊断，大的诊疗中心专家second opinion的重要性，不要轻信一般
诊疗中心做出的结论
4. 自己积极找各种资源及平稳心态的重要性：如果不能平复心情，可去教会读读圣经
，听... 阅读全帖 |
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a**e
发帖数: 5094 | 36 Are u talking about low grade glioma or glioblastoma multiforme? |
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d********r
发帖数: 303 | 37 and if it is diffusely infiltrative brain stem glioma, this disease is
maligant and is highly malignant. (compariable with kennedy's disease and
classified as glioblastoma) |
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f******I
发帖数: 769 | 38 wouldn't trust a whole lot of wikipedia,
temproal lobe seizure is often from the lesions in hippocampal region,
either sclerosis, or tumor(glioma), or vascular malformation, it is often
partial simple or complex seizure but can generalize, one of the old drugs,
like dilantin, is effective, one of the newer drugs keppra, i think would
also be quite effective,
regardless your relative would need a brain MRI imaging test to rule out
cancer,
sometimes if the foci of the lesion can be localized, surg |
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C*******l
发帖数: 105 | 39 国内一个比较好的亲戚得了，五年前在脑内放了一些药物，当时的效果还不错。但现在
复发，肿瘤又在生长。请问这种病的英文翻译是brain glioma吗？美国这边有什么好的
药物可以治疗吗？
谢谢了。 |
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l*h
发帖数: 4124 | 40 I commented on your earlier message but oh man, this is killing me. When "医
生说很确定是颅咽管瘤", I thought they saw the typical presentations of it
because 颅咽管瘤 is so distinct on MRI scans. 颅咽管瘤 in children have
large cysts in >99% cases whereas infratentorial gliomas rarely show cystic
changes before radiation therapy. 颅咽管瘤 can encroach into the brainstem
but the epicenter is outside the brainstem.
Intracranial choriocarcinomas are very rare. But as HCG was significantly
elevated, it is a real possibil... 阅读全帖 |
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l*h
发帖数: 4124 | 41 it's another piece of evidence that glioma is unlikely. |
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d********1
发帖数: 77 | 42 Sorry I cannot type Chinese on this computer.
My wife (33 years old) has some 腿麻, 胳膊麻 etc lately. Her numbness is
sometimes on the left or right leg, arm, toes, fingers, and even face, but
never on all these places at the same time.
We went to our family doctor and he ordered a non-contrast brain MRI for her
. It turns out there is a sub-centimeter focus on her brain. Then our doctor
ordered a contrast MRI, the sub-centimeter focus is still there. Report 1)
below is the full report by the radiol... 阅读全帖 |
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l*h
发帖数: 4124 | 43 this is a case that there is no standard answer to the question what to do
next in the short term. if you go to different doctors, you will get
different opinions that can be mainly classified as the following:
1. close follow-up with MRI, do nothing in the interim.
2. close follow-up with MRI, treat as demyelinating disease in the interim.
3. biopsy.
if the description of her symptoms is accurate, the probability of a
demyelinating disease (such as multiple sclerosis) is much higher than other
... 阅读全帖 |
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d********1
发帖数: 77 | 44 3X a lot for your detailed response!
The description of her symptoms is as accurate as I can describe (she has
some 腿麻, 胳膊麻 etc lately. Her numbness is sometimes on the left or right
leg, arm, toes, fingers, and even face, but never on all these places at
the same time).
She did not have obvious limb weakness.
What do you mean by "seizure"? 抽搐/癫痫？If so, she does not have it. But
some times (very occasionally, I would say less than 6 times a year in
recent years), she has brief leg/foot抽筋。Not sur... 阅读全帖 |
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l*h
发帖数: 4124 | 45 what if I say I just Googled all the stuff?
i just published a book chapter on a certain group of gliomas in a
neurooncology textbook. but don't try to find my name. there are quite some
Chinese names in the field.
both. |
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h***f
发帖数: 162 | 46 有没有片子？
很有可能是Diffuse infiltrative pontine glioma. 这种儿童脑瘤（peak rate 是6～
9岁）是最可怕的，因为他基本不能治。治疗方法是radiation,可是9月到一年脑瘤会长
回来。平均寿命是诊断后一年到14月。 |
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f******z
发帖数: 14 | 47 我妈妈六月脑出血，查出来是胶质瘤IV期（在前额叶靠左），在杭州开刀，现在放化疗
都做过了。昨天我爸去了华山医院找一个亲戚介绍的医生问，那个医生说因为第一刀开
得不好，残余太多，现在没什么办法了。
因为不怎么上mitbbs，之前都不知道这个版，今天才听人说，我想问下大家，美国这边
有什么好的医院可以咨询？或者好的医生？我上网查了，Johns Hopskins有个glioma
center，这个怎么样？
先谢谢大家了，虽然我也知道这个病基本的治疗方案都是差不多，很大可能美国这边也
没什么区别。但是，起码要试一下。谢谢！ |
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h**e
发帖数: 9290 | 48 同学最近急问:他母亲 由于脑胶质瘤引发脑疝，请问有什么好的西药新药可以稳定或治
愈该病?疾病英文名：脑胶质瘤 brain glioma 脑疝 brain henia
如能提供新药名，他或许可以让国内医生想办法从美国购买
非常感谢 |
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l*h
发帖数: 4124 | 49 1. has he been diagnosed with lung cancer? there is not sufficient evidence
to support a lung cancer diagnosis from imaging studies you showed.
2. the brain tumor looks more likely to be high-grade glioma. take this with
a grain of salt because of the low quality of the images you showed. |
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