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全部话题 - 话题: pyruvate
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m*********k
发帖数: 10521
1
来自主题: WBCenter版 - 车板代发包子
[Automobile] does Feb 2 ● 祝大家兔年吉祥
10*63=630
成功奖励 10 伪币的用户: toddf70, jokeyzhu, yinxl805, toddf70, spokesman, chisini, Cory88, emma84, providential, daxue, BNS, marsmission, happydoudou, lanzhu, haolaa, Jingqg1979, yeca, yym, shopper2, codycody, sanjie, inthebox9, anniee, PATTY618, jinxj, gardenerla, youyouyuyu88, almeda, sunnystar, wldft, sdfarmer, santorini, fengerjing, changling, cjcup, graceWA, SNRI, toypig, moonpolar, trueme, yumeiren918, gator2006, PTH, Mountain99, andysun, play... 阅读全帖
m*********k
发帖数: 10521
2
来自主题: WBCenter版 - 帮忙代发包子
[ebiz] bruce Mar 3 ● 发1000个包子求祝福
10*921*1.1=10131
成功奖励 10 伪币的用户: andysun, qwer, buyer, yyber, estore, ID1989, PandaSyr, playonpaper, zkjeffrey, JianlianYi, GoHokies, enantiomers, parkjisung, jiawen, dealking, pl6666, duckegg, patrickcp, ilovecat, boster, this, lxppku, Jingqg1979, niuniuyaya, hte, gscjordan, majstock, pisces, wiiwii, andy123, Daduge, laoer, pash, ching, bluesky007, cooler, BabiRabbit, boomking, sioc, chddtt, LTA, kb123, qqjf, liuneon, bia, misszidane, nashak40, pangzhut... 阅读全帖
m*********k
发帖数: 10521
3
来自主题: WBCenter版 - Nextgeneration版申请代发包子
[NextGeneration] catdoudou Mar 8 ● JM们的节日,发380个包子
10*380=3800
成功奖励 10 伪币的用户: zhkx, zhe, Jezzbel, alexx, server, rain716, drew, min20120, Belichick, dpg, wmzhe, renayin, bobowa2007, lawyer520, niuma2009, axyxy, pdd, variance, pipiniang, lillblues, halloween, win7, winnie888, jadedodos, APRIL83412, nabla, magellan, gj2009, aily, allien, ballerina, graceshcn, formulaone, TRex, xyymm, TuDing, tangguo, stephanie, LCK, sing, tinayt, wlam, wistaria2009, miny, kicolly, tinglily, smurf50, sca... 阅读全帖
m*********k
发帖数: 10521
4
来自主题: WBCenter版 - 请代发ebiz版面公告包子
[ebiz] NewEgg Apr 10 ● [bssd]【删水公告】btw,笑死我了,你们太能折
腾太能灌了!
10*290=2900
成功奖励 10 伪币的用户: N007, antony, zkjeffrey, JianlianYi, Funding,
sunfish, EAdreamer, phila, NeoEgg, andysun, icast, smart1118, playonpaper,
grapeshot, odor, blueclassic, wilson334, gogle, coolyun, lovett, mitshui,
vvinter, soimbox, sglz, woodcao, pash, treeline, nttknju, newmanalways,
chehu, gluying, woollybugger, Sporteer, duckegg, capricorn87, hh, fairchild,
misszidane, mott, cressida, iNovel, ck01320, routing, hongshu2, ... 阅读全帖
m*********k
发帖数: 10521
5
来自主题: WBCenter版 - 请代发E-SPORTS版面包子
[E-Sports] kingcw Apr 11 ● 发包子,庆祝上了mitbbs和网易163首页
10*87=870
成功奖励 10 伪币的用户: braving, guaichong, shua, erjie, jaydige, lyufeng,
paotangde, lxinzhen9, ytf, aniee, audi00, PInce, TJNeibor, atu2010, firebolt
, yaya09, McAfee, codycody, scoreboard, Reach, dannyfulgent, photohog,
yumeiren918, colico, silentwolf, ocean2007, LikeAsura, HLLL, pyruvate,
snowdy, chibaozi78, nekingll, dumand, magicloud, bleakhand, VichyBoy,
abstracta, babykitty, wuyt, Kaaka, HELLFENG, renayin, hero080, yeca,
Tianqian... 阅读全帖
m*********k
发帖数: 10521
6
来自主题: WBCenter版 - 请代发包子
[ebiz] SinoKnight Apr 15 ● [518个包子贴]恭喜神机重返$1000关口
10*518=5180
成功奖励 10 伪币的用户: ihouse, patrickcp, kanlezi, grapeshot, TodayEscape,
qinzhonghai, recrusader, louadams, Mensol, Daduge, nickhodge, davidhero,
andysun, kinson, codycody, Rog, newmanalways, niuniuyaya, JianlianYi,
noisewo, reddest, ruikosta, Alohas, zkjeffrey, playonpaper, xixihahaye,
kaplan, anniee, lovett, gogle, heWG, weigoodone, Lelle, yym, dramawatcher,
wormsworld, mitshui, Mercury2008, lxppku, vvinter, ttfe, pash, applefall,
col... 阅读全帖
m*********k
发帖数: 10521
7
来自主题: WBCenter版 - 请代发ebiz版复活节彩蛋
[ebiz] NewEgg Apr 24 ● 复活节&清华大学百年校庆彩蛋
10*322=3220
成功奖励 10 伪币的用户: NeoEgg, mihu, crossya, majstock, TPP, canyu,
beetle1986, nancylem, liondream, lovett, mengguo, cnusmler, horselibra, pash
, zkjeffrey, entry, NBDL, eggonlyegg, mir, flsunseeker, meilefu, anniemm,
watermoon, rainrainrain, chanmaomao, wormsworld, piu, chahu, denny, nttknju,
phila, miaolu618, wh, JianlianYi, kaylaxu, pdh, treeline, shiro, sglz,
BBfunds, busby, N007, icast, smart1118, chehu, hann, boster, jet121,
SinoKnight, il... 阅读全帖
m*********k
发帖数: 10521
8
来自主题: WBCenter版 - 为人父母版申请代发包子
[Parenting] panda1010 May 6. ● 【母亲节活动】大包子庆祝母亲节(update)
10*220=2200
成功奖励 10 伪币的用户: Vesper8, xiaojiong, xiaoboat, fbfb, lilycola, izze,
shell, stompasaurus, Busywithbaby, moonflower7, cwl, shellyluo, shinai,
kicolly, renayin, crystal00, xyqs, littleice, INITIUM, northgate, aily, aye,
oxhorn, tag, OHVAOHCA, frombeijing, Carrpool, atu2010, seselily, liuzhu,
pinkpanther, shua, notsmart, appril, EA, makejian, Rosmarinus, yumeiren918,
pyruvate, newjourney, nancy8313, juicyapple, sterol, ttff, yeca... 阅读全帖
m*********k
发帖数: 10521
9
来自主题: WBCenter版 - 请求代发包子
[Basketball] pandamalone Jul 29 ● 今天26岁生日,发260个包子给大家:D
10*282=2820
成功奖励 10 伪币的用户: Acartia, Skylla, lxinzheng, lg, fbfb, VichyBoy,
chahu, hubn, guaichong, roc, esperlada, RYin, abego, Belichick, shua, yor,
stinkbug, paotangde, bmwcar, yyqian, raym, GlennGould, Gforce, ZQL, ZnO,
aniee, etalau, horselibra, renov, bravo1, smokefly, Daniel1217, zx1106,
AdamsMyIdol, aaayyy, JackJones, bmedcl, liumang, dealwithyou, GGYY,
reload2009, yaya09, liuzhu, lbanzheng, kitkat, erjie, hunzaimeiguo, sckyo,
isis... 阅读全帖
m*********k
发帖数: 10521
10
来自主题: WBCenter版 - 请代发ebiz版面国庆包
biomass28, ghostbusters, DreamerOnAir, scoreboard, nuun, wrxys, miaowuhl,
hellokitty05, killmesoftly, soulhunter, hanshan, sinoruiz, jackyucd, Working
, lyufeng, shyzeus, AshAndAir, moli2010, coolbid, hongkong, yaya09,
yumeiren918, pyruvate, chibaozi78, colico, RazorEdge, ningyan, ytf, jadejade
, Nakamura, xmj75, rollingegg, haohaohaohao, howryou, sirius314,
nokiasymbian, USSTang, Davina, southCA, emiliezhou, hopeman, chongqing,
ruskiller, axii, Pizzz, mimimi, puppet, chandra, PBR, dwaw, flycow,... 阅读全帖
m*********k
发帖数: 10521
11
来自主题: WBCenter版 - 申请代发包子
[Family]
107287 g T76879297 Sep 29 ● 欢迎新版三 发包子
成功奖励 10 伪币的用户: lilycola, Chapterxi, feelfree, dingdingace,
heavenepic, fbfb, CloudyBear, bbppb, coolbeans, didiwo, Lotusfly, dash2000,
havefun11, Renshaw, santorini, yearly, jjl231, nalazn, bengalcat, almeda,
IED, airdragon77, fairway, catdoudou, LittleSeven, lancy1982, hunzaimeiguo,
CHINAWANG, Febaugust, westview2011, RazorEdge, sonatina99, yidingjizhu,
Rodimus, HifoCH, Lizi, chenjiu, allien, guoguo82, pinkplumeria, madchem,
yizhitumao, IIII, ... 阅读全帖
m*********k
发帖数: 10521
12
来自主题: WBCenter版 - Running版申请代发包子
[Running]
pager Oct 4 ● 名额已满,谢谢大家 [100个包子贴] 预祝各位芝
成功奖励 10 伪币的用户: Rodimus, mark, dingdingace, Dwayna, fbfb, isis1414,
ryanflower, wwn, ificcy, yhflogan, qizhu, thundergust, CloudyBear, pkerface4
, cindyliu02, chouwacuipin, lailai11, alfastrology, orangebaby, xx0816,
pumpkincat, kotex, lishan, penguinfly, iat, vivil, carlx, magentay,
shiningking, doudouk, Febaugust, sassy, xiangmoni, gaospring, graceicy,
ElCerrito, RockU, hj439, LotteryWin, xiwei0728, Bostonhu, jadejade,
foolsgold, hok00... 阅读全帖
m*********k
发帖数: 10521
13
来自主题: WBCenter版 - 申请帮忙发包子
1.[EB23]
127493 dryice Oct 3 ● (截止了 谢谢)个月偶要是current了( PD 9/27),
成功奖励 10 伪币的用户: cressida, kenchendz, Pizzz, htchen, taotao701, II1,
TPP, Carrpool, nia, routing, mtgobest, lucy0910, cyyxx76, banbanyi, jerry214
, crystalcock, raym, PQOI, qiqi112, Beijing, qiqi1122, meatoo, catdoudou,
Hinode, noodles, Allknown, hbxg1207, vfnt, newdoc, sunnystar, ADOMET8,
jet121, GetThere, kevin001, BabyRyan, dephpei, zjhzhou, Teamster, sunnyzjli,
kayaka, rocnex, cdv2019, alpenglow, AshleyTang, madrigal, ro... 阅读全帖
m*********k
发帖数: 10521
14
来自主题: WBCenter版 - 请代发包子
接上页:Rodimus, cnnssb, markh, umner, zzz59, FlyingBrothe, bigbaozi,
harding, atu2010
, Febaugust, goddy, matthewh, bbcool, BeckyHO, IC, oldgordon, cm123,
scoreboard
, Simin, hynek, realman888, lbanzheng, kevinj, vanddany, wobest, wsx123,
Unstoppable, smartkevin, xiaodaigua, astra, yansohu, Biofuel, IPLAW, ovoneL
, almeda, candy1980, dongge, beetle1986, Acartia, graceWA, mttbbs, reign1983
, BRavens, EC2, Skylla, KAROUN, gavin1972, DarkHill, lyufeng, colour, samiya
, erjie, hhaini, pinkplumeria, Mmj... 阅读全帖
m*********k
发帖数: 10521
15
来自主题: WBCenter版 - 请代发ebiz版面劳动季节慰问包
[ebiz]
91841 g NewEgg Nov 19 ● 都等着发包子呢?shopping season总动员包。
扣除版面:(ebiz)8690伪币成功
成功奖励 10 伪币的用户: N007, cressida, duckegg, girlfriend, xingprox,
lovemocca, scan, sioc, koalabears, doo, zcty, anywhere, recrusader, trueme,
smthiid, comefromwate, pixie, limaojian, jet121, beanies, aaappp, yctaotao,
loojiannan, niannian2008, gengxin, juewang12, beanny, Yuanfei, jtn, HMC,
foot777, nemesis111, aaasd, winderwater, Lizi, gluying, maplezh45, jmgjj,
apple12345, yaomingfun, tiantou81, fermion, sxl, Pan... 阅读全帖
m*********k
发帖数: 10521
16
来自主题: WBCenter版 - Stock 版申请代发包子
[Stock] kbrhouston Nov 22 ● 村长要吃火鸡,没钱买,我来发包子
扣除版面:(Stock)3980伪币成功
成功奖励 10 伪币的用户: mikejackson, BHistory, proper, wqlys, goseewait4,
Banlangen, davidxie, wavelets, yachtting, tofaerieland, davidibt, purp,
lucifer11, twins2010, plsletmein, Dow, IamPC, ilyqy81, midaner, cappucino,
ruoli, gamay, unicorns, czh123, philistin, meornot, daledale, week11,
knockitoff, Nacho2000, yaya09, luanyiking, SSvsNS, kelvin2088, Greenwin,
guaichong, atu2010, yellow2011, wxu121, sunnystar, VichyBoy, kmcoffee, LLJJ... 阅读全帖
m*********k
发帖数: 10521
17
来自主题: WBCenter版 - 申请代发包子
[NextGeneration]
47159 m junting Dec 25 ● In hospital. water broken plz bless(顺产
成功奖励 10 伪币的用户: driftfly, coolhunter, Baobaoma2011, variance,
babyaggie, stern, clemaj, Wind07, rungriffin, lavender305, windofoct, bbjk,
yn422, solarustc, alice99, passwd, mydmaster, Pistachio80, xuechen, wuxin999
, fireblbl, maggie918, caishen, roubaozipu, LePetitPpn, NYLIFE, outlook1,
anneal, shopper2, az, yang12, wiggler, heidy, flyingdancer, BabiRabbit,
Jijiwai, newjob06, tingquanyin, codycody, ORMS, lovin... 阅读全帖
m*********k
发帖数: 10521
18
来自主题: WBCenter版 - 请代发ebiz版2012龙年新春大吉包
"[ebiz]
NewEgg Jan 23 ● ★★★ebiz版2012龙年新春大吉包★★★"
扣除版面:(ebiz)12960伪币成功
成功奖励 10 伪币的用户: bingchuan, intelbot, anywhere, nulile, jeanqian,
crystalcock, gray, rangeo, shawn, zhang1985, mitbbscc, cqwood, zkjeffrey,
whatso, leidage, Dzeko, asdf77771111, busby, huaihuai, enz, Funding, knli79,
qianqun, chopsuey, sarab, Geisha, HappyFriday, blessev1, dahuani, bison,
bigbear, cokernut, MrYi, recrusader, kanbbs, smallcat2010, NeoEgg, blueli,
winderwater, daloser, ardorbird, yym, kelly9988, rackyfx, LTA... 阅读全帖
m*********k
发帖数: 10521
19
来自主题: WBCenter版 - 申请代发包子_Immigration
"[Immigration]
pqinsheng Mar 28 ● EB1A I140 TSC PP 求祝福"
成功扣除 1650 伪币的用户: pqinsheng
成功奖励 10 伪币的用户: tracy1, alsin, creageng2005, KumGo, loveyu,
flashball, miluo, wstwst, threedot14, KnicksLin17, crazyhead, Allknown,
kanbbs, vming, wangwangbb, D16, am1, Achilles, goforeb1, chatter,
hurrica5687, flly, ShuaPing, quench, syang33, arrion, a18, shawjone,
enjoyfun, pepper1982, iweibi, qm1, lifeGG, broodtonight, Mutombo, yiyichuchu
, runtu, Jingqg1979, Ranma98, PPfund, Draper, lop, phila, C18, hUrtU,
... 阅读全帖
m*********k
发帖数: 10521
20
来自主题: WBCenter版 - JobHunting申请代发thanksgiving包子
" 【JobHunting】
done Nov 17. ● Thanksgiving包子"
成功奖励 10 伪币的用户: aoyao, Calsky, Chevy, haogg, Ginobili, SecretVest,
StevenLow, xiwest, luner, kqxqx, hychin, Bianconera, acrophoenix, lolhaha,
clemaj, huntjobs, casecssa, wbing520, kex, kabob, majstock, atman, zkjeffrey
, duel, tangbohu2, MKZ, stxxx, mianhua, Sandra27, iABC, darkice, travelodge,
po4, sdljy, wits, linmm, noueop, rushice, lotic, longba, uuhhbuhh, diara,
prettyhello, Mobot, hanshi, feniie, gat, xeme, redyellowblu, lop, jbamboo,
cshaxu, w... 阅读全帖
m*********k
发帖数: 10521
21
来自主题: WBCenter版 - Movie版申请代发圣诞节包子
"【Movie】
laufine Dec 26 ● [bssd]圣诞包子,前100个!大家圣诞快乐!"
成功奖励 10 伪币的用户: laufine, sleepy2, ALVANY, javabear, phucc, Ag,
rodney, iLong, NetBear, ZIZOU, mmd, desmond, Bodhidharma, PetTurtle,
jyjyjjyy, suwon, ydxdad, catchafish, tacular, heathen, monkeyface, joss,
rightHand, leaf1234, Katniss, Go8, oneday16, uuhhbuhh, rainyj, loneonly,
chaselife, YuanShihKai, Orange23, omo, MovingTo, TianZhiYa, iwii, yunyun,
yumeiren918, chris00, nuncius, pyruvate, chibaozi78, riteaidlover, colico,
yare, dengluzhuc... 阅读全帖
m*********k
发帖数: 10521
22
来自主题: WBCenter版 - Military版申请代发包子
[Military] TempBM Feb 8. ● 贺新春,送祝福,奔年味
成功奖励 20 伪币的用户: Acartia, yyman, iForpus, maywind, iBull, blueforpus,
routing, archeologist, creek6, yare, zjhzhou, Tread, happy77, tootsie,
caoyu, kalpis, acrophoenix, noueop, cattie, gible, monkeyface, newblue,
IDjia, ne0987, yugong, feniie, catdoudou, SpikeLi, wgyeric, chenjiu, diara,
wxx033000, chordata, nuncius, beilo, eukarya, kwik, schizo, clould, pnc,
JJCNJ, renwei8066, chyang, lemur, graceWA, wywxm, bnw, buddhist, formulaone,
nervous, eccwa... 阅读全帖
m*********k
发帖数: 10521
23
来自主题: WBCenter版 - 个人申请版主代发包子
"[NextGeneration]
txak47 Apr 2. ● 儿子今天3岁生日,发300个包子。"
成功奖励 10 伪币的用户: winebaby, grape1234, tobiasia1234, babycitybear,
Tunafish, bluebbing, mmmmnnnn, sunflower33, GHK918, XIAOXIAOXIN, mmzz, mmmjj
, qingqingcao9, ilnn, HWCW, muzijing, yrx417, szwy, almondmilk, lydian,
royroy, phingl, goldfishla, zxcleveland, visky2011, DreamerOnAir, Maisy,
racyren, TrustMe, sawq, NYLIFE, bingning, Sissi2000, dodo72, Icelus, J449,
zhangx6, xiangww2011, Lwtc, volbeat, Vesper8, appleandadam, Augu, qzangel,
will... 阅读全帖
m*********k
发帖数: 10521
24
来自主题: WBCenter版 - 个人申请代发包子
"【NextGeneration】
DaMaoDing May 17 ●发包子,求祝福"
成功奖励 10 伪币的用户: summerbluemm, xi, xiaozt, yaoyao24531, riteaidlover,
solosis, quilava, Tunafish, Dingding18, HWCW, myhoo, Gocamry, GooPe, yingwu
, dancerflying, tobiasia1234, jojobunny, GHK918, orison, lushtropical, kwik,
cliu706, kingler, minleimao, FIBA, lucyhe2, lunarcakes, amyhe2, yumeiren918
, pyruvate, colico, chibaozi78, zqq, misty, beitz, baicaitou
成功扣除 396 伪币的用户: DaMaoDing
m*********k
发帖数: 10521
25
来自主题: WBCenter版 - WaterWorld版申请代发奖励
"[WaterWorld]thirdman Jun 11 ●粽子节快乐!"
成功奖励 10 伪币的用户: linglingQ, girlfriend, helloxiaohei, leaker, hacker,
rosaceae, scherbenmeer, summerbluemm, babycome, onetmoone, hair,
CleverBeaver, greenboro, lvus, Luftwaffle, ghostlover, nervous, honeydew10,
p51668, lemur, UncIeLiu, Rufous, mlh, chordata, johnsonville, schizo,
duoduofan, rsll6, MitLeaks, yuzu, torpor, Degree95, molestar, BeachBall,
MW123, seattle2009, Austin2013, nkdd, Ausin2013, EXRT600, pooper, swineustc,
dadong, tresmarias, warley, ... 阅读全帖
m*********k
发帖数: 10521
26
来自主题: WBCenter版 - 个人申请代发包子
[NextGeneration] EA Jun 22 ● [bssd]100个包子,需要祝福
成功奖励 10 伪币的用户: lilyning, babycitybear, dingdingace, Sandie, azhuzhu
, vivijiji, freyjaa, walsams, Mthreshold, KANKAN1225, thier, cher,
sunflower33, hwq74, Ranaplancyi, wells, Babylachlan, iceprincess, suannai,
babykittens, yumeiren918, pyruvate, doublefish, tobiasia1234, katever,
summitzf, femur, colico, chibaozi78, appleandadam, xiaociwei, Sunshinemm,
bwqxmm, xihui, oliver0118, MorphineA, cooljing, lulushz, jkzh, starrylily,
firstsno... 阅读全帖
s*******c
发帖数: 5161
27
来自主题: WBCenter版 - NextGeneration版申请代发过年包子
注:1)版面活动:手续费无;2)个人申请:手续费10%:
1
代发版面/ID:
NextGeneration/swineustc
代发事由(主题标题或链接):
【包子题活动】过年好啊过年好
http://www.mitbbs.com/article_t0/NextGeneration/36558603.html
赞助(有:附链接,没有:无):

楼主是否计入统计:

以下id每位奖励10伪币(共458位)
platinum05,royroy,lily201209,unkown11,robck,nkskip,danatnjus,wistaria2009,
marsmission,yutouni99,NaNaWu,babycitybear,yunni,babisun,GiovannaX,sparkling8
,guanguan,zhongfentou,I5151,Bedodo,getababy,Mrs6,melovedyou,nene415,lulumm,
dama123,Rosefield,zzgn,lilyning,wgyeric,seekingjob10,myle,cuddleb... 阅读全帖
m*********k
发帖数: 10521
28
来自主题: WBCenter版 - NextGeneration版申请代发过年包子
"[NextGeneration]swineustc Jan 29 ● 【包子题活动】过年好啊过年好"
成功奖励 10 伪币的用户: platinum05, marsmission, dama123, lucky103, mayyi,
furret, eccwa, Yabba, seekingjob, zubat, Dovee, mioool, chartis, kingler,
zaaw, baojiahuo, lovingGrace, PreciousYoun, longtime3, aagpark1, criminds,
fannysunny, Yowl, travelbear, Nacho2000, maxima, newlifeinu, fjcatty,
gqtese38, flyflysky, nooneanswer, stalker, lucky888888, probie, stardrift,
ingcat, magmar, BeachBall, Ginger690, CVS1, sunnyyuyu, lopoo, lakefrog,
qpalzmgggg, ... 阅读全帖
m*********k
发帖数: 10521
29
"[Fishing]mayo Feb 8 ● 祝大家新春快乐--排包子 100个"
扣除版面:(Fishing)650伪币成功
成功奖励 10 伪币的用户:?Allknown, AprilWind, baicaiyezi, biokold, bncy,
calendaryear, camelina, cheatgod, chibaozi78, childheart, colico, cxc, dager
, DOCKER, eca, ericd, fugitive, GoooG, GREENin2014, GTI, Hangout, hermitllj,
hmjsa, honeycrisp, houmitbbs, icast, jhmlj, kc, leooooo, lingcod,
linuslinus, luckworm, masterwu, meatatarian, mgiceae, mickliu, middlemouse,
MITsunlight, MusicWings, Nacho2000, ossacomu, phoenixmoon, pintujie... 阅读全帖
y*******u
发帖数: 397
30
来自主题: Medicalpractice版 - 求助: 6个月大婴儿肝衰竭 (转载)
他们在西雅图儿童医院
这是最新进展,大家帮看看吧。http://www.huaren.us/dispbbs.asp?boardid=333&Id=1411021
4月9号进ER, 今天4月15日, 6天过去了,宝宝今天还算稳定。给大家说说一些事情,
寻求帮助并希望对其他父母有些借鉴。
第一: 几乎我们接触到的绝大多数医生都不仔细看报告,他们根本就是按照程序准备换
肝,没有一个人相信我们家的宝宝能保住他的肝。这时候如果父母不给孩子最后一线希
望,孩子肯定没法独自战斗了。
第二: 就是医生们现在都很专业,导致很多事情互相扯皮。在我们家宝宝的情况下,就
是杀人。我们一再强调孩子这个病跟长期食用奶粉反应不好有关,所以任何奶粉都得非
常小心。结果他们给孩子的奶粉30个小时内,孩子各方面情况全面恶化,被迫再次大剂
量输血浆和ffp. 以后要成为医生的网友,父母有关孩子生长详细信息的话一定要认真
地听和思考。对于一个小个体,医生的固执就是一个肝或一条命。
第三就是huaren和mitbbs的确是对我们海外需要帮助的人来说最及时。我当时看了
huaren好心人的帖子并下载了建议的paper, 看完后到... 阅读全帖
w*****s
发帖数: 230
31
【 以下文字转载自 Biology 讨论区 】
发信人: wwwjobs (minimouse), 信区: Biology
标 题: 请看看附件图片文字,建议我们能做什么呢?
发信站: BBS 未名空间站 (Thu Jan 16 12:24:03 2014, 美东)
附件是主治大夫的reasoning(email回复,红字), 他的水平我们还是很佩服的,因为
他已开始猜了个病就和我们宝宝症状非常一致,可惜后来发现不是;而且他不是代谢病
专家。
问题是坚持宝宝不吃长链脂肪酸的奶粉后,他奇迹般地改善了;完全出乎医生们的预料
。我感觉医生列的是常见的代谢病,而我们感觉宝宝吃长链脂肪酸似乎是慢性中毒,大
概需要一个月左右才能体现出来。因为过程很慢,我们怀疑很多方法查不出来。
我们最大的问题是如果是这种病怎么查?不能确认的话他一辈子吃饭都受影响,基本也
就很难出门时间长一点了。尤其是他的肝已经在要换的边缘。医生们现在改口说他的病
程都是偶然,可我们不能同意。为什么每次都是长链吃一段时间就得病,尤其是这次停
了鸡蛋后马上改善。。
谢谢大家。 (下面是文字,可惜设置不成红色)
Q: Our big... 阅读全帖
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