V*****G 发帖数: 337 | 1 Can someone please help on Bourneville-Pringle disease?
Which hospitals / doctors handle this disease well in US? Thanks!
Any info will be appreciated. |
A*******s 发帖数: 9638 | 2 Bourneville-Pringle disease is also called Tuberous sclerosis.
TS is an genetic autosomal dominant disease.
This is a very complex disease.
http://www.medlink.com/medlinkcontent.asp |
V*****G 发帖数: 337 | 3 Thanks A++, is there effective treatment for this disease?
Friend is seeking medical treatment in us?
【在 A*******s 的大作中提到】 : Bourneville-Pringle disease is also called Tuberous sclerosis. : TS is an genetic autosomal dominant disease. : This is a very complex disease. : http://www.medlink.com/medlinkcontent.asp
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A*******s 发帖数: 9638 | 4 Not to my knowledge.
【在 V*****G 的大作中提到】 : Thanks A++, is there effective treatment for this disease? : Friend is seeking medical treatment in us?
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V*****G 发帖数: 337 | 5 Thanks, they heard there is a medication that can alleviate the skin lesions
, is that true? 3x.
【在 A*******s 的大作中提到】 : Not to my knowledge.
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A*******s 发帖数: 9638 | 6 Not sure about skin lesions treatment.
But Sirolimus is the drug showing some promise for renal and brain lesions.
http://clinicaltrials.gov/ct2/show/NCT00490789
No expertise for these meds since it is not in my field.
lesions
【在 V*****G 的大作中提到】 : Thanks, they heard there is a medication that can alleviate the skin lesions : , is that true? 3x.
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V*****G 发帖数: 337 | 7 Thanks for your consistent help!
【在 A*******s 的大作中提到】 : Not sure about skin lesions treatment. : But Sirolimus is the drug showing some promise for renal and brain lesions. : http://clinicaltrials.gov/ct2/show/NCT00490789 : No expertise for these meds since it is not in my field. : : lesions
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V*****G 发帖数: 337 | 8 Can someone please help on Bourneville-Pringle disease?
Which hospitals / doctors handle this disease well in US? Thanks!
Any info will be appreciated. |
A*******s 发帖数: 9638 | 9 Bourneville-Pringle disease is also called Tuberous sclerosis.
TS is an genetic autosomal dominant disease.
This is a very complex disease.
http://www.medlink.com/medlinkcontent.asp |
V*****G 发帖数: 337 | 10 Thanks A++, is there effective treatment for this disease?
Friend is seeking medical treatment in us?
【在 A*******s 的大作中提到】 : Bourneville-Pringle disease is also called Tuberous sclerosis. : TS is an genetic autosomal dominant disease. : This is a very complex disease. : http://www.medlink.com/medlinkcontent.asp
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A*******s 发帖数: 9638 | 11 Not to my knowledge.
【在 V*****G 的大作中提到】 : Thanks A++, is there effective treatment for this disease? : Friend is seeking medical treatment in us?
|
V*****G 发帖数: 337 | 12 Thanks, they heard there is a medication that can alleviate the skin lesions
, is that true? 3x.
【在 A*******s 的大作中提到】 : Not to my knowledge.
|
A*******s 发帖数: 9638 | 13 Not sure about skin lesions treatment.
But Sirolimus is the drug showing some promise for renal and brain lesions.
http://clinicaltrials.gov/ct2/show/NCT00490789
No expertise for these meds since it is not in my field.
lesions
【在 V*****G 的大作中提到】 : Thanks, they heard there is a medication that can alleviate the skin lesions : , is that true? 3x.
|
V*****G 发帖数: 337 | 14 Thanks for your consistent help!
【在 A*******s 的大作中提到】 : Not sure about skin lesions treatment. : But Sirolimus is the drug showing some promise for renal and brain lesions. : http://clinicaltrials.gov/ct2/show/NCT00490789 : No expertise for these meds since it is not in my field. : : lesions
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D**i 发帖数: 325 | 15 óD2?
【在 V*****G 的大作中提到】 : Can someone please help on Bourneville-Pringle disease? : Which hospitals / doctors handle this disease well in US? Thanks! : Any info will be appreciated.
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