a*******e
发帖数: 253 | 1 这种病(细胞肥大性白血病)国内都没有几例。现在爸爸在中日友好医院，经过专家会诊
终于确诊了。还有几项指标还没有出来，到时一定再向达人报告。
我现在整天满脑子都是这件事情，查看网络信息，好像化疗效果很不好。现在医生只是
注射激素，没有进行化疗。我爸明年一月就70岁了，他前两个月刚去了西藏，不光是拉萨，还到处跑
甚至到了珠峰大本营(5200米)。他在青海曾发烧，但是很快就好了就接着跑西藏。
他以前各项指标(血压，血脂，血糖，红血球，白血球，血小板)都不错，就是有肠息肉
，还有慢性咽喉炎。
他这病很急性，髋骨和大腿肌肉疼痛，发烧不退。
西医的话也没有好的治疗办法，几乎就是宣判死刑唯一就是时间问题。拖上5，6年人很
受罪。
我想来想去觉得可能是高原环境大量射线生活环境剧烈变化造成这个病，否则这么急性
猛烈突然得病非常的不合逻辑。
听说中医有火龙派和寒派，以毒攻毒有时会有奇效。
我知道的和心里的想法都大概都写出来了，很乱请谅解。
医学昌明，研究进步，国医精深，本版达人众多，请畅所欲言罢！再叩谢了！爸爸结婚
晚生孩晚，为培养我和哥哥辛苦一辈子，刚刚享了几年福便生此巨变，想来心痛至极。 |
a*******e
发帖数: 253 | 2 对不起，可能是肥大细胞性白血病，我真的什么都不懂！ |
a*******e
发帖数: 253 | 3 谢谢。请问中医会不会有效果？
except
to |
a*******e
发帖数: 253 | 4 另外请问这种病一般是怎样治疗呢？
except
to |
a*******e
发帖数: 253 | 5 我总觉得这种病这么凶恶，应该是来得快去得也快罢！！！ |
a*******e
发帖数: 253 | 6 那请问现在有没有这方面的研究，突破性甚至实验中的治疗方法？
用。 |
a*******e
发帖数: 253 | |
c***m
发帖数: 2630 | 8 Pray to God please!
拉萨，还到处跑
【在 a*******e 的大作中提到】
: 这种病(细胞肥大性白血病)国内都没有几例。现在爸爸在中日友好医院，经过专家会诊
: 终于确诊了。还有几项指标还没有出来，到时一定再向达人报告。
: 我现在整天满脑子都是这件事情，查看网络信息，好像化疗效果很不好。现在医生只是
: 注射激素，没有进行化疗。我爸明年一月就70岁了，他前两个月刚去了西藏，不光是拉萨，还到处跑
: 甚至到了珠峰大本营(5200米)。他在青海曾发烧，但是很快就好了就接着跑西藏。
: 他以前各项指标(血压，血脂，血糖，红血球，白血球，血小板)都不错，就是有肠息肉
: ，还有慢性咽喉炎。
: 他这病很急性，髋骨和大腿肌肉疼痛，发烧不退。
: 西医的话也没有好的治疗办法，几乎就是宣判死刑唯一就是时间问题。拖上5，6年人很
: 受罪。
|
a*******e
发帖数: 253 | |
a*******e
发帖数: 253 | 10 I am praying to him every single moment!
【在 c***m 的大作中提到】
: Pray to God please!
:
: 拉萨，还到处跑
|
|
|
l******8
发帖数: 4 | |
a*******e
发帖数: 253 | 12 Thanks! he is traveling around the world right now, and his students are located in north America, Taiwan, or Hong Kong, but my dad is in Bejing :(
Can a doctor decide a prescription without seeing a patient? //bow
【在 l******8 的大作中提到】
: 问问汉唐中医倪海厦有没有什么办法？
|
D*******l
发帖数: 5462 | 13 可以。
建议你还是在北京找医生吧，怎么也方便很多的。北京很多水平很高的中医生，打听打
听就找到了，找找刘渡舟，胡希恕这2老的徒弟们比较靠谱。
located in north America, Taiwan, or Hong Kong, but my dad is in Bejing :(
【在 a*******e 的大作中提到】
: Thanks! he is traveling around the world right now, and his students are located in north America, Taiwan, or Hong Kong, but my dad is in Bejing :(
: Can a doctor decide a prescription without seeing a patient? //bow
|
s********n
发帖数: 9 | |
l*h
发帖数: 4124 | 15 汉唐中医倪海厦 is a quack at best. I'd say he's a murderer.
located in north America, Taiwan, or Hong Kong, but my dad is in Bejing :(
【在 a*******e 的大作中提到】
: Thanks! he is traveling around the world right now, and his students are located in north America, Taiwan, or Hong Kong, but my dad is in Bejing :(
: Can a doctor decide a prescription without seeing a patient? //bow
|
a*******e
发帖数: 253 | 16 达人们，您们好。我爸的病经过北大医院的骨髓化验，他们结论是嗜酸粒细胞白血病。
我有一位生物学专家朋友告诉我，慢性粒细胞白血病(chronic myeloid leukemia)美国
已有药治疗，是Novartis公司生产的，叫作Gleevec(named "Glivec" in Europe)，主
要成分是imatinib。
请问哪位达人了解这种药？它对嗜酸粒细胞白血病有疗效吗？
即使这药有用，也要美国癌症医生开处方才可买到。
先叩谢了！！ |
g*****j
发帖数: 1211 | 17 Gleevec only works in Chronic myeloid leukemia (CML) with Philadelphia
chromosome, which is a specific chromosomal abnormality that causes most
cases of CML. I don't think that is what your father has though according
to your description. Hematologic cancer is very sophisticated medicine.
Accurate diagnosis based on molecular medicine is crucial, because we have
very effective ways to treat some disease, but little treatment for others.
BTW, I am glad that you are not only trying Hantang :) T |
a*******e
发帖数: 253 | 18 Dear gordonj, the information you provided is much appreciated. I really
wish that my father's current doctor could read what you just wrote, in
English. She can't even diagnose the type of Leukemia, even with the help
from other "experts".
I don't care about spending money, as long as this drug can cure my dad. But
...
Many thanks, and wish you and your family a very happy and prosperous new
year.
is
【在 g*****j 的大作中提到】
: Gleevec only works in Chronic myeloid leukemia (CML) with Philadelphia
: chromosome, which is a specific chromosomal abnormality that causes most
: cases of CML. I don't think that is what your father has though according
: to your description. Hematologic cancer is very sophisticated medicine.
: Accurate diagnosis based on molecular medicine is crucial, because we have
: very effective ways to treat some disease, but little treatment for others.
: BTW, I am glad that you are not only trying Hantang :) T
|
a*******e
发帖数: 253 | 19 Dear lmh, besides my wife and family I do not believe in any person in large
. I do not believe any religion. I believe in myself.
Do you think there is any use for me to try getting this drug for my father?
Many thanks and wish you and your family a happy and prosperous new year!
.
【在 l*h 的大作中提到】
: 汉唐中医倪海厦 is a quack at best. I'd say he's a murderer.
:
: located in north America, Taiwan, or Hong Kong, but my dad is in Bejing :(
|
a*******e
发帖数: 253 | 20 Thanks for the information and your judgment. I am trying to gather whatever
information that can be of a tiny little use.
Thanks again.
the
【在 l*h 的大作中提到】
: 汉唐中医倪海厦 is a quack at best. I'd say he's a murderer.
:
: located in north America, Taiwan, or Hong Kong, but my dad is in Bejing :(
|
