k********y
发帖数: 92 | 1 已行摘除术。经北京专家鉴定，分析如下：送检会诊切片镜片下为松果体区肿瘤组织，
内可见多种成分，神经母细胞瘤成分伴神经细胞、节细胞分化；另可见原始间叶成分，
有软骨化趋势，肿瘤中还可见多量腺管样结构，内含多量黑色素，符合视网膜原基结构
。免疫细化标记ini-1(＋),考虑松果体区松果体原基肿瘤（pinoal anlage tumor)可能
性大。
谢谢！ | d*w
发帖数: 384 | 2 The microscopic description is consistent with pineal anlage tumor. This
does not mean the diagnosis must be correct but for the sake of discussion,
I will assume this is the diagnosis.
Pineal anlage tumor is extremely rare. There are about 10 case reports over
the last 10-15 years.
The majority of reported pineal anlage tumor is highly malignant, with
survival less than 9 months. Because of the rarity of this tumor, there is
no standard therapy available. From its clinical behavior, it is gener
【在 k********y 的大作中提到】
: 已行摘除术。经北京专家鉴定，分析如下：送检会诊切片镜片下为松果体区肿瘤组织，
: 内可见多种成分，神经母细胞瘤成分伴神经细胞、节细胞分化；另可见原始间叶成分，
: 有软骨化趋势，肿瘤中还可见多量腺管样结构，内含多量黑色素，符合视网膜原基结构
: 。免疫细化标记ini-1(＋),考虑松果体区松果体原基肿瘤（pinoal anlage tumor)可能
: 性大。
: 谢谢！
| k********y
发帖数: 92 | 3 Thanks so much! dww!
,
over
【在 d*w 的大作中提到】
: The microscopic description is consistent with pineal anlage tumor. This
: does not mean the diagnosis must be correct but for the sake of discussion,
: I will assume this is the diagnosis.
: Pineal anlage tumor is extremely rare. There are about 10 case reports over
: the last 10-15 years.
: The majority of reported pineal anlage tumor is highly malignant, with
: survival less than 9 months. Because of the rarity of this tumor, there is
: no standard therapy available. From its clinical behavior, it is gener
| d*w
发帖数: 384 | 4 As I mentioned medulloblastoma, its standard care in the U.S. is:
1. surgical resection if possible
2. followed by radiation therapy, for the primary site up to 60 Gy total
dose (1.8Gy/f), the neuraxis up to 30 Gy total dose (1.8Gy/f)
It would be a very tough decision for the family to make whether to receive
the radiation therapy. There is very limited experience of stereotactic
radiation therapy in children so young in China. Besides, it requires
general anesthesia in the radiation therapy cha
【在 k********y 的大作中提到】
: Thanks so much! dww!
:
: ,
: over
| k********y
发帖数: 92 | |
|
