p****s
发帖数: 5 | 1 家兄4月的时候突然抽搐，失去知觉4小时.当时诊断为脑部感染.住院2星期出院.
不料于上星期复发,近日查出脑部左额叶胶质瘤。以前一直没有任何脑部症状.
现在还在等待手术方案,听说位置比较深,不好做.普遍的说法是此类肿瘤非常恶性,复发
率高.家里现在急乱了,请有相关信息的朋友一切消息,有没有认识的脑肿瘤专家，可以
给看看MRI图片提供意见.
好象术后都是放疗和化疗,美国有没有必较好的国内没有的药品可以买到.
非常感谢. |
f****o
发帖数: 2770 | 2 glioblastoma?节哀
temodar国内肯定有的
cure是不太可能的，复发率很高
在有限的生命中完成自己想做的事情吧 |
l*h
发帖数: 4124 | 3 basically there is no 复发率 in GBM because you have almost 0% remission/
cure rate. what you referred to is perhaps progression.
【在 f****o 的大作中提到】
: glioblastoma?节哀
: temodar国内肯定有的
: cure是不太可能的，复发率很高
: 在有限的生命中完成自己想做的事情吧
|
p****s
发帖数: 5 | 4 谢谢你们的回复.
我看到美国有所谓的第四种疗法叫NOVOTTF:http://www.novocure.com/ttf_therapy.php?ID=16
用一种电波覆盖头部.
不知可值得一试.现在只有美国几个医院有.没有保险的情况下不知如何操作.
还有一种所谓的免疫治疗,不知效果如何.
http://sjjzl.org/
【在 l*h 的大作中提到】
: basically there is no 复发率 in GBM because you have almost 0% remission/
: cure rate. what you referred to is perhaps progression.
|
f****o
发帖数: 2770 | 5 不如你去那个免疫治疗试试吧，也就是延长生命。。。 |
l*h
发帖数: 4124 | 6 NovoTTF actually has FDA approval. Not sure what type of approval though.
Few neuro-oncologists know about it. Even fewer recommend it. FYI, I know
every neuro-oncologist and neurosurgeon at a major cancer center. Not a
single one would use it at this time.
There are various immune therapies. The most developed one appears to be the
a vaccine against EGFRvIII. It actually prolongs survival. After a certain
period of time (not very long), the cells expressing EGFRvIII become
undetectable, but other tumor cells replaces them. The 5-year survival rate
is still very very low.
【在 p****s 的大作中提到】
: 谢谢你们的回复.
: 我看到美国有所谓的第四种疗法叫NOVOTTF:http://www.novocure.com/ttf_therapy.php?ID=16
: 用一种电波覆盖头部.
: 不知可值得一试.现在只有美国几个医院有.没有保险的情况下不知如何操作.
: 还有一种所谓的免疫治疗,不知效果如何.
: http://sjjzl.org/
|
p****s
发帖数: 5 | 7 Thanks lmh very much for your info.
Would you please provide more info of the availability of immune therapy
with vaccine against EGFRvIII? I am in N. California. Is it available in any
clinic around? Does it require insurance?
Thanks again.
the
certain
rate
【在 l*h 的大作中提到】
: NovoTTF actually has FDA approval. Not sure what type of approval though.
: Few neuro-oncologists know about it. Even fewer recommend it. FYI, I know
: every neuro-oncologist and neurosurgeon at a major cancer center. Not a
: single one would use it at this time.
: There are various immune therapies. The most developed one appears to be the
: a vaccine against EGFRvIII. It actually prolongs survival. After a certain
: period of time (not very long), the cells expressing EGFRvIII become
: undetectable, but other tumor cells replaces them. The 5-year survival rate
: is still very very low.
|
l*h
发帖数: 4124 | 8 the major site of trial is at Duke. contact John Sampson (or Duane Mitchell)
of neurosurgery.
any
【在 p****s 的大作中提到】
: Thanks lmh very much for your info.
: Would you please provide more info of the availability of immune therapy
: with vaccine against EGFRvIII? I am in N. California. Is it available in any
: clinic around? Does it require insurance?
: Thanks again.
:
: the
: certain
: rate
|
p****s
发帖数: 5 | 9 Appreciate very much!
Mitchell)
【在 l*h 的大作中提到】
: the major site of trial is at Duke. contact John Sampson (or Duane Mitchell)
: of neurosurgery.
:
: any
|
N*********e
发帖数: 21 | 10 可以试试MMS1+MMS2
可以查看网站：www.mms-cn.com
另外推荐书：许盛添＜绝处逢生＞ |
f****o
发帖数: 2770 | |
