b**********e
发帖数: 531 | 1 现在在北京儿童医院，因为是晚期，说是治愈率很低，没有希望了。父母很绝望，想让我
帮忙打听美国这边的技术治愈率如何。
我不是学医的，只能从网上搜搜，不知有什么办法打听比如哪个医院好，大概要多少钱
之类的。还有国内有什么医院可以推荐？
各位请多帮忙看看。
很多时候在想，现代人生活这么不健康，环境也恶化，有很多父母自身生活也困苦没保
障，为什么要生小孩啊。把小孩带到世上要经历这么多痛苦，就像是在犯罪啊。。。 | W********r
发帖数: 158 | 2 It depends on the stage. Overall, the cure rate for Wilm's tumor is 90%. You
need to find a good surgeon do a complete gross total resection,
immediately followed by radiation, then a few months chemotherapy. Most kids
will be cured with almost no long term side effect. If there is pulmonary
metastasis, will need whole lung radiation and the outcome is still
excellent. The tough ones are the ones with bilateral wilm's tumor.
【在 b**********e 的大作中提到】
: 现在在北京儿童医院，因为是晚期，说是治愈率很低，没有希望了。父母很绝望，想让我
: 帮忙打听美国这边的技术治愈率如何。
: 我不是学医的，只能从网上搜搜，不知有什么办法打听比如哪个医院好，大概要多少钱
: 之类的。还有国内有什么医院可以推荐？
: 各位请多帮忙看看。
: 很多时候在想，现代人生活这么不健康，环境也恶化，有很多父母自身生活也困苦没保
: 障，为什么要生小孩啊。把小孩带到世上要经历这么多痛苦，就像是在犯罪啊。。。
| b**********e
发帖数: 531 | 3 Very sorry , this morning in the phone i heard it wrong, should be 神经母细
胞瘤 在骨髓里。我改了原贴
多谢多谢
You
kids
【在 W********r 的大作中提到】
: It depends on the stage. Overall, the cure rate for Wilm's tumor is 90%. You
: need to find a good surgeon do a complete gross total resection,
: immediately followed by radiation, then a few months chemotherapy. Most kids
: will be cured with almost no long term side effect. If there is pulmonary
: metastasis, will need whole lung radiation and the outcome is still
: excellent. The tough ones are the ones with bilateral wilm's tumor.
| W********r
发帖数: 158 | 4 50% neuroblastoma is stage 4 (with distant metastasis including bone marrow)
at diagnosis. For stage 4 disease, 5 year overall survival is 50% in US.
Survival is probably much worse in China because it requires very intensive
chemotherapy, aggressive surgery, immune therapy, autologous stem cell
transplant. If the patient wants to be treated at US, I recommend you to go
to Memorial Sloan-Kettering Cancer Center. All the chemotherapy used to
treat neuroblastoma was developed from there. The surgeon is probably the
best surgeon in the whole world to do surgery on a neuroblastoma patient.
Wing
【在 b**********e 的大作中提到】
: Very sorry , this morning in the phone i heard it wrong, should be 神经母细
: 胞瘤 在骨髓里。我改了原贴
: 多谢多谢
:
: You
: kids
|
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