y*******2 发帖数: 16 | 1 朋友3个月的宝宝被诊断为血管瘤KTS综合征,宝宝出生的时候就发现在背部、腰部和大
腿处都有明显的红色印记。现在右侧手脚比左侧手脚明显偏大,但功能与智力发育正常。
朋友一家已经求助过国内多家医院,但是都没有好的治疗办法,相问问这里的各位朋友
,是否有人了解美国的哪家医院最擅长治这种病,对于从国内来的病人大概的治疗费用
会是多少? | t*******g 发帖数: 286 | 2 Sporadic congenital problem. No Cure.
Treatments are primarily supportive, and may include compression
garments, chronic pain therapy, laser therapy for the cutaneous
stain, and vascular/orthopedic surgical procedures as needed. The
clearest indication for surgical therapy is leg length discrepancy.
http://k-t.org/
U can get some help/info from KTS support group.
常。
【在 y*******2 的大作中提到】![](/moin_static193/solenoid/img/up.png) : 朋友3个月的宝宝被诊断为血管瘤KTS综合征,宝宝出生的时候就发现在背部、腰部和大 : 腿处都有明显的红色印记。现在右侧手脚比左侧手脚明显偏大,但功能与智力发育正常。 : 朋友一家已经求助过国内多家医院,但是都没有好的治疗办法,相问问这里的各位朋友 : ,是否有人了解美国的哪家医院最擅长治这种病,对于从国内来的病人大概的治疗费用 : 会是多少?
| y*******2 发帖数: 16 | 3 非常感谢!
【在 t*******g 的大作中提到】![](/moin_static193/solenoid/img/up.png) : Sporadic congenital problem. No Cure. : Treatments are primarily supportive, and may include compression : garments, chronic pain therapy, laser therapy for the cutaneous : stain, and vascular/orthopedic surgical procedures as needed. The : clearest indication for surgical therapy is leg length discrepancy. : http://k-t.org/ : U can get some help/info from KTS support group. : : 常。
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