h***e
发帖数: 782 | 1 5个月的男婴，刚被诊断出肺间质病变，是通过ct。请问这种病那个医院比较好，怎么
治比较好。这种病是不是很麻烦，会有很严重的后遗症吗。能治好吗。 |
f****o
发帖数: 2770 | 2 肺间质病变----具体啥病啊
cystic fibrosis? |
h***e
发帖数: 782 | |
h***e
发帖数: 782 | 4 刚刚问了一下，是肺间质发生病变，cT显示肺部有成片阴影，接近肺间质肺炎。是不是
还有救？ |
l*h
发帖数: 4124 | 5 be very careful when you hear 肺间质发生病变 or 肺间质肺炎 in Chinese.
in textbooks and in hospitals in China, they usually just refer to
mycoplasma or viral pneumonia, which is quite often seen in infants and
easily curable in the vast majority of patients if properly treated.
this is a very wrong use of terminology.
in online patient education material of 肺间质肺炎 in Chinese, however,
people use a direct translation of English material for "interstitial
pneumonitis." This is a serious disease that is extremely rare in infants (
mainly seen in adults over 40 or 50 years old).
this is also a very wrong use of terminology.
without seeing the detailed medical file, we don't know what it is referring
to, but more likely mycoplasma or viral pneumonia.
【在 h***e 的大作中提到】
: 5个月的男婴，刚被诊断出肺间质病变，是通过ct。请问这种病那个医院比较好，怎么
: 治比较好。这种病是不是很麻烦，会有很严重的后遗症吗。能治好吗。
|
l*h
发帖数: 4124 | 6 think about the possibility of the radiologist using the term in the first
scenario and the pediatrician in the second. it would be a horrible
situation but the danger of this happening is very real.
【在 l*h 的大作中提到】
: be very careful when you hear 肺间质发生病变 or 肺间质肺炎 in Chinese.
: in textbooks and in hospitals in China, they usually just refer to
: mycoplasma or viral pneumonia, which is quite often seen in infants and
: easily curable in the vast majority of patients if properly treated.
: this is a very wrong use of terminology.
: in online patient education material of 肺间质肺炎 in Chinese, however,
: people use a direct translation of English material for "interstitial
: pneumonitis." This is a serious disease that is extremely rare in infants (
: mainly seen in adults over 40 or 50 years old).
: this is also a very wrong use of terminology.
|
h***e
发帖数: 782 | 7 只是说肺间质病变，接近肺间质肺炎，是不是还没那么严重哇，还可以治愈。一个月内
，这已经是第二次住院了。上次诊断是普通肺炎，住了yige星期院就出院了。结果很快
又反复。第二次住了一星期院 用抗生素都不见好，才去照ct ，然后诊断出肺间质病变
。现在需要买雾化机。请问需要在美国买吗。还是直接在国内买。国内是在内地二线城
市。需要去北京这样的大城市去买吗。希望热心人指导一下
【在 l*h 的大作中提到】
: think about the possibility of the radiologist using the term in the first
: scenario and the pediatrician in the second. it would be a horrible
: situation but the danger of this happening is very real.
|
l*****y
发帖数: 5737 | 8 你没有理解lmh的意思。
“间质性肺炎”一般是由肺炎支原体或者病毒感染引起的，小孩很常见。
“间质性肺病”是另一个完全不同的疾病大类，里面又包括很多分类，小孩很少见，并
且诊断起来不是那么容易的。
你现在的描述没有办法确定到底是哪个，治疗方法也是完全不同的。
【在 h***e 的大作中提到】
: 只是说肺间质病变，接近肺间质肺炎，是不是还没那么严重哇，还可以治愈。一个月内
: ，这已经是第二次住院了。上次诊断是普通肺炎，住了yige星期院就出院了。结果很快
: 又反复。第二次住了一星期院 用抗生素都不见好，才去照ct ，然后诊断出肺间质病变
: 。现在需要买雾化机。请问需要在美国买吗。还是直接在国内买。国内是在内地二线城
: 市。需要去北京这样的大城市去买吗。希望热心人指导一下
|
h***e
发帖数: 782 | 9 请问你这是说很有可能不是那种严重的病，而是常见的一种小儿肺炎
【在 l*h 的大作中提到】
: think about the possibility of the radiologist using the term in the first
: scenario and the pediatrician in the second. it would be a horrible
: situation but the danger of this happening is very real.
|
l*h
发帖数: 4124 | 10 i don't think there is a hurry for you to buy a nebulizer. the hospital
should have plenty. if not, how can it be called a hospital?
well, you need to accept the fact that you cannot rely on doctors in China.
please post a more detailed medical file of the kid so i can give you some
suggestions.
【在 h***e 的大作中提到】
: 只是说肺间质病变，接近肺间质肺炎，是不是还没那么严重哇，还可以治愈。一个月内
: ，这已经是第二次住院了。上次诊断是普通肺炎，住了yige星期院就出院了。结果很快
: 又反复。第二次住了一星期院 用抗生素都不见好，才去照ct ，然后诊断出肺间质病变
: 。现在需要买雾化机。请问需要在美国买吗。还是直接在国内买。国内是在内地二线城
: 市。需要去北京这样的大城市去买吗。希望热心人指导一下
|
|
|
l*h
发帖数: 4124 | 11 i don't think the kid has "interstitial pneumonitis."
more likely he has a pneumonia caused by mycoplasma, chlamydia, certain
viruses or some less common bacteria. the tests are available in China, but
the doctors must think about them first. well, it's not very common in kids
so young, but you can see one or two such patients every a few weeks.
【在 h***e 的大作中提到】
: 请问你这是说很有可能不是那种严重的病，而是常见的一种小儿肺炎
|
l*h
发帖数: 4124 | 12 i meant in that situation, the misuse of medical terms can really scare the
patients/parents to death, while the real disease is very curable.
【在 h***e 的大作中提到】
: 只是说肺间质病变，接近肺间质肺炎，是不是还没那么严重哇，还可以治愈。一个月内
: ，这已经是第二次住院了。上次诊断是普通肺炎，住了yige星期院就出院了。结果很快
: 又反复。第二次住了一星期院 用抗生素都不见好，才去照ct ，然后诊断出肺间质病变
: 。现在需要买雾化机。请问需要在美国买吗。还是直接在国内买。国内是在内地二线城
: 市。需要去北京这样的大城市去买吗。希望热心人指导一下
|
l*h
发帖数: 4124 | 13 the imaging results you sent me are consistent with viral bronchiolitis, the
vast majority are caused by respiratory syncytial virus (RSV). the
treatment is easy: inhale nebulized saline (3% preferred, normal saline also
OK). if there is breathing difficulty, sambutamol can be used.
the vast majority of patients are under 9 or 10 months old. in those
requiring hospitalization, most stay for no more than 3 or 4 days.
support care includes humidified air, oxygen if necessary, fluid if
necessary.
antibiotics, antivirals, standard inhaling dilators etc are USELESS in this
disease.
i need to emphasize, this is NOT a 肺炎.
【在 h***e 的大作中提到】
: 请问你这是说很有可能不是那种严重的病，而是常见的一种小儿肺炎
|
l*h
发帖数: 4124 | 14 a clarification about viral bronchiolitis and RSV: 90-95% of patients are
under 9 or 10 months old. 60-90% of kids get infected with the virus (RSV)
by the age of 12 months and fewer than 5% need hospitalization, the others
just get a mild and short fever that is ended before the kid is brought to a
doctor's office.
the
also
this
【在 l*h 的大作中提到】
: the imaging results you sent me are consistent with viral bronchiolitis, the
: vast majority are caused by respiratory syncytial virus (RSV). the
: treatment is easy: inhale nebulized saline (3% preferred, normal saline also
: OK). if there is breathing difficulty, sambutamol can be used.
: the vast majority of patients are under 9 or 10 months old. in those
: requiring hospitalization, most stay for no more than 3 or 4 days.
: support care includes humidified air, oxygen if necessary, fluid if
: necessary.
: antibiotics, antivirals, standard inhaling dilators etc are USELESS in this
: disease.
|
l*h
发帖数: 4124 | 15 this is a reflection of how bad the medical training/service in China is.
viral bronchiolitis is the most common disease in infants. its diagnosis
doesn't even require plain chest X-ray for most patients. this is true
worldwide. it is not an "American" disease.
i truly don't understand how "doctors" in China don't understand any
symptoms/signs. they just rely on expensive imaging studies, and the so-
called "radiologists" don't understand diseases either.
how ridiculous to think all lung infections are pneumonia. in fact, in
infants, pneumonia is only 10 - 20% of lung infections.
【在 h***e 的大作中提到】
: 5个月的男婴，刚被诊断出肺间质病变，是通过ct。请问这种病那个医院比较好，怎么
: 治比较好。这种病是不是很麻烦，会有很严重的后遗症吗。能治好吗。
|
z******2
发帖数: 1907 | 16 nebulizer is cheap
your insurance should cover it.
buy it, then u can use it when u need it.
【在 h***e 的大作中提到】
: 只是说肺间质病变，接近肺间质肺炎，是不是还没那么严重哇，还可以治愈。一个月内
: ，这已经是第二次住院了。上次诊断是普通肺炎，住了yige星期院就出院了。结果很快
: 又反复。第二次住了一星期院 用抗生素都不见好，才去照ct ，然后诊断出肺间质病变
: 。现在需要买雾化机。请问需要在美国买吗。还是直接在国内买。国内是在内地二线城
: 市。需要去北京这样的大城市去买吗。希望热心人指导一下
|
