E******r
发帖数: 40 | 1 Guess it is Systemic lupus erythematosus (SLE). There is no known cure of this
lupus in USA. If kidneys are already involved, it is at pretty severe
stage..... Patient might need dialysis (tou4 xi1), or even kidney transplant.
For meds, corticosteroids are prescribed to supress the immune system.
Methotrexate, cyclophosphamide (Cytoxan), azathioprine (Imuran), etc. But
those meds can lead to many side effects, too, because they will make the
patient vulnerable to get infected. |
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f******I
发帖数: 769 | 2
treat underlying diseases, hep c, alcohol, blah blah,
monitor closely for signs of encephalopathy/portal hypertension and all the
other good complications, get on a transplant list and wait for a new liver,
also, zinc 220mg every day, |
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e********y
发帖数: 189 | 3 My dad has had 14 years of hepatitis B. Recently he was diagnosed of liver
cancer. I'm thinking of lung transplanation for him. Does anybody know how
much it usually cost in China?
Thanks! |
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e********y
发帖数: 189 | 4 Anybody can answer my question?
Thanks a lot! |
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s****i
发帖数: 2993 | 5 I don't know how much, but typically liver cancer patients
can't live long enough before a liver is available to him.
unless you have channels getting a liver fast than other
patients (like the guy did couple of years ago in the US). |
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s****i
发帖数: 2993 | 7 unfortunately liver cancer is one of the hardest to fight.
at this stage the chance of survival is small.
liver transplant is often not possible, as there's long wait
for livers and most liver cancer patients die before one is
available.
it would certainly a big decision. for older people, being
conservative and focus on relieving pains probably is a
better choice. |
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gq
发帖数: 321 | 8 in China, TIPS is performed mostly for shunting purpose instead of the
pre=transplant treatment. it is very helpful for patients of cirrhosis with
acites.
it
mostly
it |
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f******I
发帖数: 769 | 9
cardiac transplant is not something that can be taken lightly, afterwards
you have to take immunosuppressants to prevent rejection, which could
patient at immunocompromised state,
for dilated non-ischemic cardiomyopathy, mostly still medical management,
not sure of her medical regimens are fine tuned enough, also she'd need an
AICD placement as well, |
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f******I
发帖数: 769 | 10 had lunch with transplant surgeon today, he said a couple months ago there
was a high risk donor in chicago, during the screening, he happened to be
during the window period of which serology for HIV and hep B were negative,
so 3 organ recipients became infected with HIV and hep B, |
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a**e
发帖数: 5094 | 11 "脑萎缩" 是一种临床表现，不是一种疾病。很多疾病都可以表现为"脑萎缩"现在还没
有有效的证据支持“神经干细胞移植可以治疗脑萎缩”。
脑萎缩 ---Brain atrophy
神经干细胞移植-- Neural stem cell transplantation |
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f******I
发帖数: 769 | 12
1. yes, gleevec is the first option for most patients diagnosed with CML,
2. needs prescription in the states otherwise impossible,
3. many patients will respond to gleevec, since it's one of the newer drugs,
not sure about long term remission rate, marrow transplant is the only know
cure, but carries significant risks,
4. very nice of you to be willing to be tested for donor, i think you'd need
HLA matching, but if she's gonna have it tested in china, for you might as
well to go to the same fa |
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f******I
发帖数: 769 | 13
if she already has ascites from cancer, it's probably late stage, wonder if
she has portal vein thrombosis?
you could find it somewhere online regarding a scoring system called CLIP, i
think C stands for child-pugh stage and P stands for portal vein thrombosis
, i forget what L and I stand for, but anyway that scoring system gives youa
guesstimate on prognosis,
for transplant there is a MELD calculation but i guess it only works for pts
in the states,
i would probably spend as much time as poss |
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f******I
发帖数: 769 | 14
i don't think monocytic leukemia is treated different than other acute
leukemia, M3 or promyelocytic leukemia treatment consists of ATRA plus chemo,
otherwise all other AML is treated with combination chemo with cytarabine
and anthracycline for induction and once achieve remission then high dose
cytarabine for consolidation, if you have relapse, the only choice would be
marrow transplant, |
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f******I
发帖数: 769 | 17
的,
what kind of surgery? transplant? TIPS? |
|
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f******I
发帖数: 769 | 19
myelodysplastic syndrome with refractory anemia is often primary due to
chromosomal abnormalities, rarely it's secondary and when it is, it's often
from chemo or radiation treatment from previous leukemia/lymphoma,
the only cure i know of would be bone marrow transplant with a matched HLA
donor, it has risk to progress to acute leukemia, and is often refractory to
commonly used chemos,
sounds like he is also hypercoagulable, |
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f******I
发帖数: 769 | 20
elevated AFP in patient with chronic hep b infection is concerning for
hepatocellular carcinoma, he might need a liver ultrasound, normally they
say if AFP is high the lesion should be more than 1cm, if there is any
lesions found on ultrasound, he'd need biopsy, then depends on the result
and number of lesions he might be suitable for chemo-embolization and
transplant,
don't know if his interferon was standard or pegylated, if he failed
pegylated INFa, then he might need to be switched to antiv |
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w**********9
发帖数: 242 | 21 for chronic myeloid leukemia, most cases can be cured with STI-571 (Gleevec).
for acute granulocyte leukemia, it is curable with vitamine A.
others will be treated best with bone marrow transplantation |
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g*****j
发帖数: 1211 | 22 Single lesion < 5 cm without metastasis, the best treatment is liver
transplant, with a 5yr survival > 70%. If metastasis already occurred,
complete recovery is difficult. A new drug Sorafenib can extend median
survival by 12 wk. |
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g***r
发帖数: 285 | 23
if it's idiopathic pulmonary fibrosis you are talking about, it's a chronic
and progressive disorder that with very poor prognosis, maybe interferon
would help, or maybe lung transplant, |
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g***r
发帖数: 285 | 24
for autosomal dominant polycystic kidney disease, i don't think there is a
cure, most of them end up with end satge renal disease requiring
hemodialysis, you can consider kidney transplant, but you'd have higher risk
of complications comparing to other patients, |
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m*********t
发帖数: 858 | 25 恩了解。。。。。看来是很不乐观啊。。。。非常非常感谢您提供这么多信息。有时候
在想要是当初听她的话学医就好了，现在也不会什么都不知道，再次感谢！
first I'd like to let you know my level of involvement with leukemia
patients so you can think about whom else you should seek advice from.
i am not involved in bone marrow transplant or general management of
leukemia patients. i am involved in the management of patients with brain /
spinal cord infiltration, and other patients requiring neurological care.
in general, the remission rates are very high for adult ALL patient |
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g*****j
发帖数: 1211 | 26 Hepatitis b treatment depends on the stage of disease. Newly infected
patients are treated with anti-HBV immunoglobulin. Chronic infection
treatment depends on severity of liver damage. If minimal liver injury and
viral titer is low, patient is usually monitored. If infection is more
active, interferon alpha as well as several reverse transcriptase inhibitor
can be used (such as Iamiudine, adefovir, entecavir). In severe cirrhosis,
liver transplantation is the only treatment. The bottom lin |
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g*****j
发帖数: 1211 | 27 Dialysis and wait for transplant. |
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x*****6
发帖数: 55 | 28 The recipient cells may regulate the development of the donor fetal cells so that there will be no conflict.
Unfortunately, I've totally forgotten this mechanism which I learned in
molecular immunology at SIBAS and UIOWA.
of implantation/transplantation. But to have physiological functions, it has
to mature and express major HHA which will cause host vs. graft rejection. |
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n******s
发帖数: 210 | 29 if this is dilated cardiomyopathy, transplantation is the only cure. Other
than that, just water pill to make her feel better. Final stage will be
chronic heart failure, suffer a lot. |
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l****l
发帖数: 42 | 30 Sorry to hear the bad news. Non hogkins's lymphoma is a malignant tumor of
human lymphocytes. General treatments include radiotherapy, chemotherapy,
bone marrow or stem cell transplantation, or combined therapies. Prognosis
is dependent on specific stages and some other factors. It is not as bad as
cancers of liver, lung, etc, but much worse than those slow-progressing
cancers such as breast, prostate cancers...
So find a good hospital and start the treatment as soon as they can. |
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M*****n
发帖数: 16729 | 31 transplant is the way to go. the sooner the better. |
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M*****n
发帖数: 16729 | 32 the cause may be genetic, if there is a higher incidence regionally.
this is why routine physical is very critical.
if the unilateral agenesis is discovered earlier then more options are
available to preserve the renal functions and more time to get a transplant. |
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h*********e
发帖数: 6936 | 33 Bless. Lots of people survived for years after kidney transplant . They live
like normal people. |
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t*******n
发帖数: 4445 | 34 Not much here. Make sure the blood pressure is well-controlled.
Excessive fluid accumulation or infected cysts need to be treated
specifically. For severe loss of kidney function there are dialysis or
transplant.
|
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c**i
发帖数: 6973 | 35 (1) You may reference the comment from
William F. Balistreri, MD,
Dorothy M. M. Kersten Professor of Pediatrics, University of Cincinnati
College of Medicine, Cincinnati, Ohio; Medical Director, Liver
Transplantation Program, Cincinnati Children's Hospital Medical Center,
Cincinnati, Ohio.
http://www.medscape.com/viewarticle/566961
I supply it only as a reference point, as you (like ordinary Americans)
cannot read medical papers.
Dr. Balistreri cited page 9 of the document linked to (2)(a).
(2) ... 阅读全帖 |
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g*****j
发帖数: 1211 | 36 If it is employer sponsored insurance, it is usually not a problem. For
self-purchased insurance, I doubt it will be an issue for diagnosis only. I
could imagine difficulty when someone need expensive procedure such as
transplant. However, you never know until you try it. |
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g*****j
发帖数: 1211 | 37 Well, transplant is the last resort for cure of cirrhosis (肝硬化). |
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c**i
发帖数: 6973 | 38 Peter Landers, New Breast Cancer Drug Found Deep in the Sea. Wall Street
Journal, Jan. 4, 2010.
http://online.wsj.com/article/SB1000142405274870411150457605977
("A study found it [Halaven] extended the life of patients with advanced
breast cancer by about two-and-1/2 months, to 13 months")
My comment:
(a) Eisai Co., Ltd. エーザイ株式会社
(a public company; headquarters Tokyo; established in 1941 by Toyoji NAITO
内藤 豊次 as Nohon Eisai Co., Ltd. 日本衛材（衛生材料の略。具体的には絆創膏
や包帯の事))
ja.wikipedia.org
(b) eribulin
htt... 阅读全帖 |
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f****o
发帖数: 2770 | 39 虚弱after chemotherapy is due to low white blood cell count. white blood
cell, which is responsible for fighting infection, is also killed by
chemotherapy. The medical term is neutropenia.
营养品 does NOT have clinical evidence to increase white blood cell count
even though there is tons of them claim "enhance immune function". Since you
do not know what exactly cancer you sister has, and what chemo drug was
used. I would not recommend you purchase anything over the counter. What if
there is a drug-d... 阅读全帖 |
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g*****j
发帖数: 1211 | 40 The best hospitals in US for Amyloidosis are Boston medical center and Mayo
Clinic. IgG light chain amyloidosis is a devastating disease with no cure
for most patients. The only cure is bone marrow transplant, but is only
applicable in selected a few patients. |
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W***M
发帖数: 50 | 41 It is the most common liver cancer in children but it is still a very rare
pediatric cancer.
The treatment is surgery + chemotherapy. The most important thing is to
achieve complete reaction by surgery. Pre and post surgery is also needed
for long term survival. Cisplatin is the most effective drug for treatment -
I am sure they are using that in Beijing. If surgery can not resect all
tumor, liver transplant is another option.
If your cousin want to come to US, let me know where she wants to go,... 阅读全帖 |
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s*******3
发帖数: 5 | 42 I have a huge favor to ask and would greatly appreciate your time and help
if possible! This is urgent and it's about my father. My father (60 years
old, in China) has liver Cirrhosis (alcohol), we were planning on a liver
transplant. His Dr. ordered a set of thorough tests, found a thrombus or
myxoma in his right atrium, about 2cms in size. It was communicated to me
that they are not sure whether it's a thrombus or myxoma, but in any case,
it's very dangerous, it could fall anytime. He needs a ... 阅读全帖 |
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y*****7
发帖数: 2869 | 43 BLESS, 不知道最后阶段TRANSPLANT是不是一个方法，bless !!! |
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I****a
发帖数: 407 | 44 Sorry to hear this. Bad things should never happen to kids.
The cure is the only acceptable outcome for the kid and unfortunately only
transplant can achieve this. |
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f****o
发帖数: 2770 | 45 复发了继续治啊
还有bone marrow transplant呢。。。这个ALL没必要放弃啊 |
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l*h
发帖数: 4124 | 46 if at late stage, there is no treatment to reverse the disease except liver
transplant is indicated for certain patients. |
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l*h
发帖数: 4124 | 47 if the scar grows excessively, its treatment is medically necessary. hair
transplant or restoration isn't considered medically necessary yet.
the one procedure that was traditionally considered medically unnecessary
but is now considered necessary is breast reconstruction after mastectomy
for breast cancer patients. |
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l*h
发帖数: 4124 | 48 seems BMT is the only way out. can be conventional bone marrow transplant or
more modern blood stem cell infusion. |
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x****y
发帖数: 127 | 49 我一个国内的朋友，一年前一场车祸后，他的十岁的儿子视神经被破坏了，"He had no
direct response for light but had indirect response"，"His left eye can see
nothing but the eyeball is still good." 他们去了国内很多医院，都没有好方法。
他们听说美国有个"stem cell transplantation".据说这个技术还属于很新的阶段，不
知道这里有没有人有什么相关的消息？
万分感谢！ |
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b**o
发帖数: 5769 | 50 前阵子才学的stem cell transplant。如果不是血癌这类不能用自己的血的病，别的种
类癌症化疗前可以把自己的骨髓干细胞抽出来，然后化疗之后再放回病人身体。来源主
要有三种：自己的血，自己的骨髓，还有脐带血。
当然也有相应的风险，比如免疫反应，尤其是接受别人捐的骨髓干细胞。
你这个病例不是说身体内基本没有癌细胞了吗？现阶段是不是该好好调养身体，然后注
意观察，定期检查呢？
有些小孩喝的营养奶比如pediasure之类的不知道有没有帮助，我们还没有学到化疗之
后的康复。
希望有更懂的朋友出来进一步解答！ |
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